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StuffThatWorks and The Marfan Foundation to Engage in Pilot Program

joint efforts will form best practices for non-profit health organizations to leverage patient self-reporting with the goal of advancing science, treatment and quality of life.

9 Tips for How to Cope with a Chronic Illness or Disability

If you have a new chronic illness or disability or if you have been dealing with health issues for some time now, it’s never too late to learn coping skills that might help you deal with this major challenge in your life.

Are Your Patients Asking about Wegovy?

Ten common questions about popular anti-obesity medications

FBN1 gene, fibrillin 1

The FBN1 gene provides instructions for making a large protein called fibrillin-1. This protein is transported out of cells into the extracellular matrix, which is an intricate lattice of proteins and other molecules that forms in the spaces between cells.