A rare neurologic disorder turns ordinary faces into disturbing monster-like ones, and research is searching for the answer.

The little-talked-about or diagnosed syndrome may be more prevalent in healthcare than we know.

When the health ecosystem discounts patient experience, it fails individuals and incurs added costs. Delayed diagnoses lead to prolonged suffering, reduced quality of life, and higher medical expenses.

EDS Subtyping May Not Be a Harmless Convention, But a Recipe for Patient Danger