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Rare and Orphan Diseases

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Treating Rare Diseases: The Challenge of Access

Although rare by definition, the collective impact of rare diseases is anything but insignificant. In the Asia-Pacific (APAC) region – home to over half of...

StuffThatWorks and The Marfan Foundation to Engage in Pilot Program

joint efforts will form best practices for non-profit health organizations to leverage patient self-reporting with the goal of advancing science, treatment and quality of life.

Hair Loss: The Hidden Toll of Stress

I LOOK IN THE MIRROR AND SEE A YOUNGISH FACE. I turn a bit to discover a bald patch on the crown of my head....

Real-World Evidence Unlocks Consumer Voice to Improve Care

Patient Experience is the Key to Improving Drug Development and Health Care, but Are We Listening?