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Rare and Orphan Diseases

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Reevaluating Ehlers-Danlos Syndrome: How Vascular EDS Patients Are Left Behind

Gil Bashe, Medika Life Editor -
EDS Subtyping May Not Be a Harmless Convention, But a Recipe for Patient Danger

Rare – Always Present and Never Forgotten

Julia Martinez -
The experience of attending Rare Disease Day at the National Institutes of Health (NIH) exceeded the confines of the definition for rare and instead should be more appropriately defined as extraordinary shares a new Medika author.

Biotech Without Borders: Reclaiming the Wonder of Science in a Distracted Age

Gil Bashe, Medika Life Editor -
I was in the media bullpen with the team when the future arrived. The launch of Roferon-A, alpha interferon marked a watershed moment in medicine:...

The Disorder That Makes Monster Faces Out of Everyone You See

Pat Farrell PhD -
A rare neurologic disorder turns ordinary faces into disturbing monster-like ones, and research is searching for the answer.

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