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Rare and Orphan Diseases

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Rare – Always Present and Never Forgotten

The experience of attending Rare Disease Day at the National Institutes of Health (NIH) exceeded the confines of the definition for rare and instead should be more appropriately defined as extraordinary shares a new Medika author.

Treating Rare Diseases: The Challenge of Access

Although rare by definition, the collective impact of rare diseases is anything but insignificant. In the Asia-Pacific (APAC) region – home to over half of...

The Best Dating Game in Health Innovation Happens Just Off the Main Stage

Every January, San Francisco undergoes a transformation. For one week, the city shifts into high gear for the life sciences sector, becoming a dense,...

The Disorder That Makes Monster Faces Out of Everyone You See

A rare neurologic disorder turns ordinary faces into disturbing monster-like ones, and research is searching for the answer.