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Rare and Orphan Diseases

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Invisible Disabilities Need Our Attention and Understanding Like No Others

Subtle differences in behavior and ineptness in social interactions are only some of the overt symptoms of neurodivergent disorders.

It’s Time to Reconsider Deadly Munchausen’s Syndrome by Proxy

The little-talked-about or diagnosed syndrome may be more prevalent in healthcare than we know.

Reevaluating Ehlers-Danlos Syndrome: How Vascular EDS Patients Are Left Behind

EDS Subtyping May Not Be a Harmless Convention, But a Recipe for Patient Danger

Real-World Evidence Unlocks Consumer Voice to Improve Care

Patient Experience is the Key to Improving Drug Development and Health Care, but Are We Listening?