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Rare and Orphan Diseases

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Hair Loss: The Hidden Toll of Stress

I LOOK IN THE MIRROR AND SEE A YOUNGISH FACE. I turn a bit to discover a bald patch on the crown of my head....

It’s Time to Reconsider Deadly Munchausen’s Syndrome by Proxy

The little-talked-about or diagnosed syndrome may be more prevalent in healthcare than we know.

StuffThatWorks and The Marfan Foundation to Engage in Pilot Program

joint efforts will form best practices for non-profit health organizations to leverage patient self-reporting with the goal of advancing science, treatment and quality of life.

Rare – Always Present and Never Forgotten

The experience of attending Rare Disease Day at the National Institutes of Health (NIH) exceeded the confines of the definition for rare and instead should be more appropriately defined as extraordinary shares a new Medika author.