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Rare and Orphan Diseases

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Looking for Zebras: Listening to Patients, Healing the Health System

When the health ecosystem discounts patient experience, it fails individuals and incurs added costs. Delayed diagnoses lead to prolonged suffering, reduced quality of life, and higher medical expenses.

Invisible Disabilities Need Our Attention and Understanding Like No Others

Subtle differences in behavior and ineptness in social interactions are only some of the overt symptoms of neurodivergent disorders.

It’s Time to Reconsider Deadly Munchausen’s Syndrome by Proxy

The little-talked-about or diagnosed syndrome may be more prevalent in healthcare than we know.

Real-World Evidence Unlocks Consumer Voice to Improve Care

Patient Experience is the Key to Improving Drug Development and Health Care, but Are We Listening?