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Reevaluating Ehlers-Danlos Syndrome: How Vascular EDS Patients Are Left Behind

Gil Bashe, Medika Life Editor -
EDS Subtyping May Not Be a Harmless Convention, But a Recipe for Patient Danger

Treating Rare Diseases: The Challenge of Access

Ravi Santani MD -
Although rare by definition, the collective impact of rare diseases is anything but insignificant. In the Asia-Pacific (APAC) region – home to over half of...

Looking for Zebras: Listening to Patients, Healing the Health System

Gil Bashe, Medika Life Editor -
When the health ecosystem discounts patient experience, it fails individuals and incurs added costs. Delayed diagnoses lead to prolonged suffering, reduced quality of life, and higher medical expenses.

StuffThatWorks and The Marfan Foundation to Engage in Pilot Program

Medika Life -
joint efforts will form best practices for non-profit health organizations to leverage patient self-reporting with the goal of advancing science, treatment and quality of life.

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