type here...

CATEGORIES

Rare and Orphan Diseases

LATEST

12Page 1 of 2

TRENDING

EDITORS CHOICE

Looking for Zebras: Listening to Patients, Healing the Health System

Gil Bashe, Medika Life Editor -
When the health ecosystem discounts patient experience, it fails individuals and incurs added costs. Delayed diagnoses lead to prolonged suffering, reduced quality of life, and higher medical expenses.

Rare – Always Present and Never Forgotten

Julia Martinez -
The experience of attending Rare Disease Day at the National Institutes of Health (NIH) exceeded the confines of the definition for rare and instead should be more appropriately defined as extraordinary shares a new Medika author.

Reevaluating Ehlers-Danlos Syndrome: How Vascular EDS Patients Are Left Behind

Gil Bashe, Medika Life Editor -
EDS Subtyping May Not Be a Harmless Convention, But a Recipe for Patient Danger

Treating Rare Diseases: The Challenge of Access

Ravi Santani MD -
Although rare by definition, the collective impact of rare diseases is anything but insignificant. In the Asia-Pacific (APAC) region – home to over half of...

CONNECT WITH US ON SOCIAL MEDIA

Medika Life is a unique, not-for-profit operating unit of FINN Partners and maintains an independent voice. Authors opinions may not necessarily represent those shared by FINN Partners and content cannot be promotional - rather informational centered on health issues, life science innovation, ecohealth and patient experience.

© Medika Life 2020 - 2022

Compliance

CORPORATE & MEDIA

Popular categories