CATEGORIES

Rare and Orphan Diseases

LATEST

TRENDING

EDITORS CHOICE

Rare – Always Present and Never Forgotten

The experience of attending Rare Disease Day at the National Institutes of Health (NIH) exceeded the confines of the definition for rare and instead should be more appropriately defined as extraordinary shares a new Medika author.

The Disorder That Makes Monster Faces Out of Everyone You See

A rare neurologic disorder turns ordinary faces into disturbing monster-like ones, and research is searching for the answer.

StuffThatWorks and The Marfan Foundation to Engage in Pilot Program

joint efforts will form best practices for non-profit health organizations to leverage patient self-reporting with the goal of advancing science, treatment and quality of life.

2024 Health Trends: Progress, Challenges, and Opportunities

Here are 10 health-sector developments—not ranked—to watch in the coming year, determined by media coverage, reader interest, and personal interest.