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Rare and Orphan Diseases

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Purpose at the Center: Craig Martin’s “Rare” Commitment to Biopharma and Patients

Gil Bashe, Medika Life Editor -
Craig Martin is a strategic chameleon in health innovation. He is equally at home in boardrooms, nonprofit leadership, consulting and advisory roles, all with...

The Disorder That Makes Monster Faces Out of Everyone You See

Pat Farrell PhD -
A rare neurologic disorder turns ordinary faces into disturbing monster-like ones, and research is searching for the answer.

Rare – Always Present and Never Forgotten

Julia Martinez -
The experience of attending Rare Disease Day at the National Institutes of Health (NIH) exceeded the confines of the definition for rare and instead should be more appropriately defined as extraordinary shares a new Medika author.

Treating Rare Diseases: The Challenge of Access

Ravi Santani MD -
Although rare by definition, the collective impact of rare diseases is anything but insignificant. In the Asia-Pacific (APAC) region – home to over half of...

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