Rare and Orphan Diseases

When the health ecosystem discounts patient experience, it fails individuals and incurs added costs. Delayed diagnoses lead to prolonged suffering, reduced quality of life, and higher medical expenses.

The Disorder That Makes Monster Faces Out of Everyone You See

Pat Farrell PhD - August 2, 2024

A rare neurologic disorder turns ordinary faces into disturbing monster-like ones, and research is searching for the answer.

Purpose at the Center: Craig Martin’s “Rare” Commitment to Biopharma and Patients

Gil Bashe, Medika Life Editor - July 30, 2025

Craig Martin is a strategic chameleon in health innovation. He is equally at home in boardrooms, nonprofit leadership, consulting and advisory roles, all with...

It’s Time to Reconsider Deadly Munchausen’s Syndrome by Proxy

Pat Farrell PhD - August 23, 2023

The little-talked-about or diagnosed syndrome may be more prevalent in healthcare than we know.

CONNECT WITH US ON SOCIAL MEDIA

Medika Life is a unique, not-for-profit operating unit of FINN Partners and maintains an independent voice. Authors opinions may not necessarily represent those shared by FINN Partners and content cannot be promotional - rather informational centered on health issues, life science innovation, ecohealth and patient experience.

CATEGORIES

Why Healing Still Begins with Relationship

The Best Dating Game in Health Innovation Happens Just Off the Main Stage

Treating Rare Diseases: The Challenge of Access

Purpose at the Center: Craig Martin’s “Rare” Commitment to Biopharma and Patients

LATEST

TRENDING

Reevaluating Ehlers-Danlos Syndrome: How Vascular EDS Patients Are Left Behind

Rare – Always Present and Never Forgotten

The Disorder That Makes Monster Faces Out of Everyone You See

Looking for Zebras: Listening to Patients, Healing the Health System

2024 Health Trends: Progress, Challenges, and Opportunities

Real-World Evidence Unlocks Consumer Voice to Improve Care

India’s Pivotal Regulatory Shift: A Possible Game-Changer in Expediting Medicines to Millions in Dire Need

Biotech Without Borders: Reclaiming the Wonder of Science in a Distracted Age

Hair Loss: The Hidden Toll of Stress

It’s Time to Reconsider Deadly Munchausen’s Syndrome by Proxy

EDITORS CHOICE

Looking for Zebras: Listening to Patients, Healing the Health System

The Disorder That Makes Monster Faces Out of Everyone You See

Purpose at the Center: Craig Martin’s “Rare” Commitment to Biopharma and Patients

It’s Time to Reconsider Deadly Munchausen’s Syndrome by Proxy

CONNECT WITH US ON SOCIAL MEDIA

Compliance

CORPORATE & MEDIA

Popular categories