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Rare and Orphan Diseases

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The Best Dating Game in Health Innovation Happens Just Off the Main Stage

Every January, San Francisco undergoes a transformation. For one week, the city shifts into high gear for the life sciences sector, becoming a dense,...

Why Healing Still Begins with Relationship

When I discuss Healing the Sick Care System: Why People Matter with audiences, I expect nods of recognition acknowledging the mess and the hopelessness...

The Disorder That Makes Monster Faces Out of Everyone You See

A rare neurologic disorder turns ordinary faces into disturbing monster-like ones, and research is searching for the answer.

Rare – Always Present and Never Forgotten

The experience of attending Rare Disease Day at the National Institutes of Health (NIH) exceeded the confines of the definition for rare and instead should be more appropriately defined as extraordinary shares a new Medika author.