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Rare and Orphan Diseases

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Real-World Evidence Unlocks Consumer Voice to Improve Care

Patient Experience is the Key to Improving Drug Development and Health Care, but Are We Listening?

Hair Loss: The Hidden Toll of Stress

I LOOK IN THE MIRROR AND SEE A YOUNGISH FACE. I turn a bit to discover a bald patch on the crown of my head....

Reevaluating Ehlers-Danlos Syndrome: How Vascular EDS Patients Are Left Behind

EDS Subtyping May Not Be a Harmless Convention, But a Recipe for Patient Danger

The Disorder That Makes Monster Faces Out of Everyone You See

A rare neurologic disorder turns ordinary faces into disturbing monster-like ones, and research is searching for the answer.