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Treating Rare Diseases: The Challenge of Access

Although rare by definition, the collective impact of rare diseases is anything but insignificant. In the Asia-Pacific (APAC) region – home to over half of...

Alagille syndrome

Alagille syndrome is a genetic disorder that can affect the liver, heart, and other parts of the body.One of the major features of Alagille syndrome is liver damage caused by abnormalities in the bile ducts.

Loeys-Dietz syndrome (LDS)

Also known as LDS or Loeys-Dietz aortic aneurysm syndrome, this is a disorder that affects the connective tissue in many parts of the body

Hockey Fan Spots Melanoma

NOT JUST ANOTHER NIGHT AT a hockey game. The Canucks faced off against my Seattle Kraken. Sitting behind the arena glass, a young woman spies...