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Alagille syndrome

Alagille syndrome is a genetic disorder that can affect the liver, heart, and other parts of the body.One of the major features of Alagille syndrome is liver damage caused by abnormalities in the bile ducts.

Health Possibilities We Can’t Afford to Block

Fixing one piece of the healthcare puzzle is encouraging - but is it transformational? Here are 10 things we can consider to make things better.

Treating Rare Diseases: The Challenge of Access

Although rare by definition, the collective impact of rare diseases is anything but insignificant. In the Asia-Pacific (APAC) region – home to over half of...

Rare – Always Present and Never Forgotten

The experience of attending Rare Disease Day at the National Institutes of Health (NIH) exceeded the confines of the definition for rare and instead should be more appropriately defined as extraordinary shares a new Medika author.