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Marfan Syndrome (MFS)

Marfan syndrome is a disorder that affects the connective tissue in many parts of the body. Connective tissue provides strength and flexibility to structures such as bones

The Power of Lifestyle Choices – The Dose of Truth in “Heal Thyself”

“You need to lose weight.”   Doctors say that to patients every day.  What they don’t do is tell patients how to do it.  That’s...

StuffThatWorks and The Marfan Foundation to Engage in Pilot Program

joint efforts will form best practices for non-profit health organizations to leverage patient self-reporting with the goal of advancing science, treatment and quality of life.

Looking for Zebras: Medical Mysteries and Transformational Patient Moments

While medicine has become more advanced and specialized, it has also become increasingly fragmented. For people is hard-to-diagnose conditions, that's another obstacle to care.