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Rare and Orphan Diseases

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Rare – Always Present and Never Forgotten

Julia Martinez -
The experience of attending Rare Disease Day at the National Institutes of Health (NIH) exceeded the confines of the definition for rare and instead should be more appropriately defined as extraordinary shares a new Medika author.

Looking for Zebras: Listening to Patients, Healing the Health System

Gil Bashe, Medika Life Editor -
When the health ecosystem discounts patient experience, it fails individuals and incurs added costs. Delayed diagnoses lead to prolonged suffering, reduced quality of life, and higher medical expenses.

Hair Loss: The Hidden Toll of Stress

Michael Hunter, MD -
I LOOK IN THE MIRROR AND SEE A YOUNGISH FACE. I turn a bit to discover a bald patch on the crown of my head....

Invisible Disabilities Need Our Attention and Understanding Like No Others

Pat Farrell PhD -
Subtle differences in behavior and ineptness in social interactions are only some of the overt symptoms of neurodivergent disorders.

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