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Rare and Orphan Diseases

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StuffThatWorks and The Marfan Foundation to Engage in Pilot Program

Medika Life -
joint efforts will form best practices for non-profit health organizations to leverage patient self-reporting with the goal of advancing science, treatment and quality of life.

2024 Health Trends: Progress, Challenges, and Opportunities

Gil Bashe, Medika Life Editor -
Here are 10 health-sector developments—not ranked—to watch in the coming year, determined by media coverage, reader interest, and personal interest.

Rare – Always Present and Never Forgotten

Julia Martinez -
The experience of attending Rare Disease Day at the National Institutes of Health (NIH) exceeded the confines of the definition for rare and instead should be more appropriately defined as extraordinary shares a new Medika author.

Hair Loss: The Hidden Toll of Stress

Michael Hunter, MD -
I LOOK IN THE MIRROR AND SEE A YOUNGISH FACE. I turn a bit to discover a bald patch on the crown of my head....

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