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Rare and Orphan Diseases

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Reevaluating Ehlers-Danlos Syndrome: How Vascular EDS Patients Are Left Behind

Gil Bashe, Medika Life Editor -
EDS Subtyping May Not Be a Harmless Convention, But a Recipe for Patient Danger

Rare – Always Present and Never Forgotten

Julia Martinez -
The experience of attending Rare Disease Day at the National Institutes of Health (NIH) exceeded the confines of the definition for rare and instead should be more appropriately defined as extraordinary shares a new Medika author.

Why Healing Still Begins with Relationship

Gil Bashe, Medika Life Editor -
When I discuss Healing the Sick Care System: Why People Matter with audiences, I expect nods of recognition acknowledging the mess and the hopelessness...

Treating Rare Diseases: The Challenge of Access

Ravi Santani MD -
Although rare by definition, the collective impact of rare diseases is anything but insignificant. In the Asia-Pacific (APAC) region – home to over half of...

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