Rare and Orphan Diseases

India’s Pivotal Regulatory Shift: A Possible Game-Changer in Expediting Medicines to Millions in Dire Need

“Go to India” May Be a Key Market for Pharma Company Growth and Global Public Health

2 years ago

The Disorder That Makes Monster Faces Out of Everyone You See

A rare neurologic disorder turns ordinary faces into disturbing monster-like ones, and research is searching for the answer.

2 years ago

StuffThatWorks and The Marfan Foundation to Engage in Pilot Program

joint efforts will form best practices for non-profit health organizations to leverage patient self-reporting with the goal of advancing science,…

2 years ago

It’s Time to Reconsider Deadly Munchausen’s Syndrome by Proxy

The little-talked-about or diagnosed syndrome may be more prevalent in healthcare than we know.

3 years ago

Hair Loss: The Hidden Toll of Stress

I LOOK IN THE MIRROR AND SEE A YOUNGISH FACE. I turn a bit to discover a bald patch on the…

3 years ago

Rare – Always Present and Never Forgotten

The experience of attending Rare Disease Day at the National Institutes of Health (NIH) exceeded the confines of the definition…

4 years ago

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