Rare and Orphan Diseases

When the health ecosystem discounts patient experience, it fails individuals and incurs added costs. Delayed diagnoses lead to prolonged suffering, reduced quality of life, and higher medical expenses.

Invisible Disabilities Need Our Attention and Understanding Like No Others

Pat Farrell PhD - August 26, 2024

Subtle differences in behavior and ineptness in social interactions are only some of the overt symptoms of neurodivergent disorders.

Reevaluating Ehlers-Danlos Syndrome: How Vascular EDS Patients Are Left Behind

Gil Bashe, Medika Life Editor - October 21, 2024

EDS Subtyping May Not Be a Harmless Convention, But a Recipe for Patient Danger

The Disorder That Makes Monster Faces Out of Everyone You See

Pat Farrell PhD - August 2, 2024

A rare neurologic disorder turns ordinary faces into disturbing monster-like ones, and research is searching for the answer.

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Medika Life is a unique, not-for-profit operating unit of FINN Partners and maintains an independent voice. Authors opinions may not necessarily represent those shared by FINN Partners and content cannot be promotional - rather informational centered on health issues, life science innovation, ecohealth and patient experience.

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EDITORS CHOICE

Looking for Zebras: Listening to Patients, Healing the Health System

Invisible Disabilities Need Our Attention and Understanding Like No Others

Reevaluating Ehlers-Danlos Syndrome: How Vascular EDS Patients Are Left Behind

The Disorder That Makes Monster Faces Out of Everyone You See

CONNECT WITH US ON SOCIAL MEDIA

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