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Rare and Orphan Diseases

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EDITORS CHOICE

It’s Time to Reconsider Deadly Munchausen’s Syndrome by Proxy

Pat Farrell PhD -
The little-talked-about or diagnosed syndrome may be more prevalent in healthcare than we know.

Real-World Evidence Unlocks Consumer Voice to Improve Care

Gil Bashe, Medika Life Editor -
Patient Experience is the Key to Improving Drug Development and Health Care, but Are We Listening?

StuffThatWorks and The Marfan Foundation to Engage in Pilot Program

Medika Life -
joint efforts will form best practices for non-profit health organizations to leverage patient self-reporting with the goal of advancing science, treatment and quality of life.

Treating Rare Diseases: The Challenge of Access

Ravi Santani MD -
Although rare by definition, the collective impact of rare diseases is anything but insignificant. In the Asia-Pacific (APAC) region – home to over half of...

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