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StuffThatWorks and The Marfan Foundation to Engage in Pilot Program

joint efforts will form best practices for non-profit health organizations to leverage patient self-reporting with the goal of advancing science, treatment and quality of life.

Alagille syndrome

Alagille syndrome is a genetic disorder that can affect the liver, heart, and other parts of the body.One of the major features of Alagille syndrome is liver damage caused by abnormalities in the bile ducts.

How Do We Americans Stack up Healthwise? Very Poorly!

Despite all, we spend on healthcare (over 4 trillion dollars or nearly 20% of GDP,) we are not a healthy population. So, how unhealthy are we? Very!

The Fluoroscope Serves as a Warning for New Medical Technology

What does a device called the Fluoroscope that measured feet have in common with modern-day DNA medicines? History has a way of repeating