Rare Disease - Medika Life

Although rare by definition, the collective impact of rare diseases is anything but insignificant. In the Asia-Pacific (APAC) region – home to over half of...

Reevaluating Ehlers-Danlos Syndrome: How Vascular EDS Patients Are Left Behind

Gil Bashe, Medika Life Editor - October 21, 2024

EDS Subtyping May Not Be a Harmless Convention, But a Recipe for Patient Danger

The Disorder That Makes Monster Faces Out of Everyone You See

Pat Farrell PhD - August 2, 2024

A rare neurologic disorder turns ordinary faces into disturbing monster-like ones, and research is searching for the answer.

StuffThatWorks and The Marfan Foundation to Engage in Pilot Program

Medika Life - July 19, 2024

joint efforts will form best practices for non-profit health organizations to leverage patient self-reporting with the goal of advancing science, treatment and quality of life.

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Treating Rare Diseases: The Challenge of Access

Reevaluating Ehlers-Danlos Syndrome: How Vascular EDS Patients Are Left Behind

The Disorder That Makes Monster Faces Out of Everyone You See

StuffThatWorks and The Marfan Foundation to Engage in Pilot Program

CONNECT WITH US ON SOCIAL MEDIA

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