Rare Disease

Why Healing Still Begins with Relationship

When I discuss Healing the Sick Care System: Why People Matter with audiences, I expect nods of recognition acknowledging the…

7 months ago

The Best Dating Game in Health Innovation Happens Just Off the Main Stage

Every January, San Francisco undergoes a transformation. For one week, the city shifts into high gear for the life sciences…

7 months ago

Treating Rare Diseases: The Challenge of Access

Although rare by definition, the collective impact of rare diseases is anything but insignificant. In the Asia-Pacific (APAC) region – home…

8 months ago

Purpose at the Center: Craig Martin’s “Rare” Commitment to Biopharma and Patients

Craig Martin is a strategic chameleon in health innovation. He is equally at home in boardrooms, nonprofit leadership, consulting and…

1 year ago

Biotech Without Borders: Reclaiming the Wonder of Science in a Distracted Age

I was in the media bullpen with the team when the future arrived. The launch of Roferon-A, alpha interferon marked…

1 year ago

Real-World Evidence Unlocks Consumer Voice to Improve Care

Patient Experience is the Key to Improving Drug Development and Health Care, but Are We Listening?

2 years ago

Looking for Zebras: Listening to Patients, Healing the Health System

When the health ecosystem discounts patient experience, it fails individuals and incurs added costs. Delayed diagnoses lead to prolonged suffering,…

2 years ago

Reevaluating Ehlers-Danlos Syndrome: How Vascular EDS Patients Are Left Behind

EDS Subtyping May Not Be a Harmless Convention, But a Recipe for Patient Danger

2 years ago

The New Covid Vaccine Is Out. Why You Might Not Want To Rush To Get It

Covid is commonplace. Some, are laid up with symptoms for days or weeks. A smaller group risks hospitalization or death.…

2 years ago

India’s Pivotal Regulatory Shift: A Possible Game-Changer in Expediting Medicines to Millions in Dire Need

“Go to India” May Be a Key Market for Pharma Company Growth and Global Public Health

2 years ago

This website uses cookies. Your continued use of the site is subject to the acceptance of these cookies. Please refer to our Privacy Policy for more information.

Read More