Rare Disease - Medika Life

joint efforts will form best practices for non-profit health organizations to leverage patient self-reporting with the goal of advancing science, treatment and quality of life.

The Disorder That Makes Monster Faces Out of Everyone You See

Pat Farrell PhD - August 2, 2024

A rare neurologic disorder turns ordinary faces into disturbing monster-like ones, and research is searching for the answer.

Biotech Without Borders: Reclaiming the Wonder of Science in a Distracted Age

Gil Bashe, Medika Life Editor - June 18, 2025

I was in the media bullpen with the team when the future arrived. The launch of Roferon-A, alpha interferon marked a watershed moment in medicine:...

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Medika Life is a unique, not-for-profit operating unit of FINN Partners and maintains an independent voice. Authors opinions may not necessarily represent those shared by FINN Partners and content cannot be promotional - rather informational centered on health issues, life science innovation, ecohealth and patient experience.

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Purpose at the Center: Craig Martin’s “Rare” Commitment to Biopharma and Patients

Biotech Without Borders: Reclaiming the Wonder of Science in a Distracted Age

Real-World Evidence Unlocks Consumer Voice to Improve Care

Looking for Zebras: Listening to Patients, Healing the Health System

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Reevaluating Ehlers-Danlos Syndrome: How Vascular EDS Patients Are Left Behind

HPV Urban Legends – From Contagion to Symptoms to Risks to Prevention – There Are More Rare Concerns that Deserve Our Attention

The Disorder That Makes Monster Faces Out of Everyone You See

Looking for Zebras: Listening to Patients, Healing the Health System

Real-World Evidence Unlocks Consumer Voice to Improve Care

India’s Pivotal Regulatory Shift: A Possible Game-Changer in Expediting Medicines to Millions in Dire Need

The New Covid Vaccine Is Out. Why You Might Not Want To Rush To Get It

Biotech Without Borders: Reclaiming the Wonder of Science in a Distracted Age

StuffThatWorks and The Marfan Foundation to Engage in Pilot Program

Purpose at the Center: Craig Martin’s “Rare” Commitment to Biopharma and Patients

EDITORS CHOICE

Reevaluating Ehlers-Danlos Syndrome: How Vascular EDS Patients Are Left Behind

StuffThatWorks and The Marfan Foundation to Engage in Pilot Program

The Disorder That Makes Monster Faces Out of Everyone You See

Biotech Without Borders: Reclaiming the Wonder of Science in a Distracted Age

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