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Rare Disease

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Reevaluating Ehlers-Danlos Syndrome: How Vascular EDS Patients Are Left Behind

Gil Bashe, Medika Life Editor -
EDS Subtyping May Not Be a Harmless Convention, But a Recipe for Patient Danger

Looking for Zebras: Listening to Patients, Healing the Health System

Gil Bashe, Medika Life Editor -
When the health ecosystem discounts patient experience, it fails individuals and incurs added costs. Delayed diagnoses lead to prolonged suffering, reduced quality of life, and higher medical expenses.

Real-World Evidence Unlocks Consumer Voice to Improve Care

Gil Bashe, Medika Life Editor -
Patient Experience is the Key to Improving Drug Development and Health Care, but Are We Listening?

HPV Urban Legends – From Contagion to Symptoms to Risks to Prevention – There Are More Rare Concerns that Deserve Our Attention

Gil Bashe, Medika Life Editor -
Inaugural International Recurrent Respiratory Papillomatosis Awareness Day

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