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StuffThatWorks and The Marfan Foundation to Engage in Pilot Program

joint efforts will form best practices for non-profit health organizations to leverage patient self-reporting with the goal of advancing science, treatment and quality of life.

Looking for Zebras: Medical Mysteries and Transformational Patient Moments

While medicine has become more advanced and specialized, it has also become increasingly fragmented. For people is hard-to-diagnose conditions, that's another obstacle to care.

Teaming Up Two Biotech Winners to Fight Cancer: CRISPR and CAR T

Advances in CAR T, a remarkable immunotherapy treatment dubbed a “living drug.” This new therapy genetically modifies a patient’s cells to fight cancer, but current research efforts hope to treat autoimmune diseases, organ damage and more.

The SERPINA1 Gene, serpin family A member 1

The SERPINA1 gene provides instructions for making a protein called alpha-1 antitrypsin, which is a type of serine protease inhibitor (serpin)