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StuffThatWorks and The Marfan Foundation to Engage in Pilot Program

joint efforts will form best practices for non-profit health organizations to leverage patient self-reporting with the goal of advancing science, treatment and quality of life.

FBN1 gene, fibrillin 1

The FBN1 gene provides instructions for making a large protein called fibrillin-1. This protein is transported out of cells into the extracellular matrix, which is an intricate lattice of proteins and other molecules that forms in the spaces between cells.

Direct to Consumer, Genetic Testing

Direct-to-consumer genetic testing provides people access to certain of their genetic information without necessarily involving a healthcare provider

Hair Loss: The Hidden Toll of Stress

I LOOK IN THE MIRROR AND SEE A YOUNGISH FACE. I turn a bit to discover a bald patch on the crown of my head....