Although rare by definition, the collective impact of rare diseases is anything but insignificant. In the Asia-Pacific (APAC) region – home…
Craig Martin is a strategic chameleon in health innovation. He is equally at home in boardrooms, nonprofit leadership, consulting and…
When the health ecosystem discounts patient experience, it fails individuals and incurs added costs. Delayed diagnoses lead to prolonged suffering,…
The experience of attending Rare Disease Day at the National Institutes of Health (NIH) exceeded the confines of the definition…
SUPERSTAR SINGER CELINE DION recently announced that he is postponing her European tour, given her development of a rare neurological…
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