Marfan Foundation

Looking for Zebras: Listening to Patients, Healing the Health System

When the health ecosystem discounts patient experience, it fails individuals and incurs added costs. Delayed diagnoses lead to prolonged suffering,…

9 months ago

StuffThatWorks and The Marfan Foundation to Engage in Pilot Program

joint efforts will form best practices for non-profit health organizations to leverage patient self-reporting with the goal of advancing science,…

1 year ago

Soccer Journalist Dies of an Aneurysm – Five Ways to Reduce Risk

LEGENDARY US SOCCER JOURNALIST GRANT WAHL DIED at 49 from a ruptured aortic aneurysm while covering the World Cup in…

3 years ago

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