<?xml version="1.0" encoding="UTF-8"?><rss version="2.0"
	xmlns:content="http://purl.org/rss/1.0/modules/content/"
	xmlns:wfw="http://wellformedweb.org/CommentAPI/"
	xmlns:dc="http://purl.org/dc/elements/1.1/"
	xmlns:atom="http://www.w3.org/2005/Atom"
	xmlns:sy="http://purl.org/rss/1.0/modules/syndication/"
	xmlns:slash="http://purl.org/rss/1.0/modules/slash/"
	
	xmlns:georss="http://www.georss.org/georss"
	xmlns:geo="http://www.w3.org/2003/01/geo/wgs84_pos#"
	>

<channel>
	<title>Empathy in Healthcare - Medika Life</title>
	<atom:link href="https://medika.life/tag/empathy-in-healthcare/feed/" rel="self" type="application/rss+xml" />
	<link>https://medika.life/tag/empathy-in-healthcare/</link>
	<description>Make Informed decisions about your Health</description>
	<lastBuildDate>Sun, 06 Apr 2025 16:05:22 +0000</lastBuildDate>
	<language>en-US</language>
	<sy:updatePeriod>
	hourly	</sy:updatePeriod>
	<sy:updateFrequency>
	1	</sy:updateFrequency>
	<generator>https://wordpress.org/?v=6.5.5</generator>

<image>
	<url>https://i0.wp.com/medika.life/wp-content/uploads/2021/01/medika.png?fit=32%2C32&#038;ssl=1</url>
	<title>Empathy in Healthcare - Medika Life</title>
	<link>https://medika.life/tag/empathy-in-healthcare/</link>
	<width>32</width>
	<height>32</height>
</image> 
<site xmlns="com-wordpress:feed-additions:1">180099625</site>	<item>
		<title>Empathy and Health Excellence — The Superpower of Care Delivery</title>
		<link>https://medika.life/empathy-and-health-excellence-the-superpower-of-care-delivery/</link>
		
		<dc:creator><![CDATA[Gil Bashe, Medika Life Editor]]></dc:creator>
		<pubDate>Sun, 06 Apr 2025 12:55:40 +0000</pubDate>
				<category><![CDATA[A Doctors Life]]></category>
		<category><![CDATA[AI Chat GPT GenAI]]></category>
		<category><![CDATA[Digital Health]]></category>
		<category><![CDATA[Diseases]]></category>
		<category><![CDATA[Editors Choice]]></category>
		<category><![CDATA[For Doctors]]></category>
		<category><![CDATA[For Practitioners]]></category>
		<category><![CDATA[General Health]]></category>
		<category><![CDATA[Habits for Healthy Minds]]></category>
		<category><![CDATA[Healthcare Policy and Opinion]]></category>
		<category><![CDATA[Policy and Practice]]></category>
		<category><![CDATA[Public Health]]></category>
		<category><![CDATA[Allison Grann MD]]></category>
		<category><![CDATA[Allyson Ocean MD]]></category>
		<category><![CDATA[Brian Thompson]]></category>
		<category><![CDATA[Caring]]></category>
		<category><![CDATA[Clinical Practice]]></category>
		<category><![CDATA[Dr John Whyte]]></category>
		<category><![CDATA[Empathy]]></category>
		<category><![CDATA[Empathy in Healthcare]]></category>
		<category><![CDATA[Gold Foundation]]></category>
		<category><![CDATA[Health Insurance]]></category>
		<category><![CDATA[Jerome Groopman MD]]></category>
		<category><![CDATA[Joseph DiTrolio MD]]></category>
		<category><![CDATA[Lawrence Phillips MD]]></category>
		<category><![CDATA[MD]]></category>
		<category><![CDATA[Valentin Fuster MD]]></category>
		<guid isPermaLink="false">https://medika.life/?p=20978</guid>

					<description><![CDATA[<p>When Medicine Transcends the Sterile Clinical Encounter</p>
<p>The post <a href="https://medika.life/empathy-and-health-excellence-the-superpower-of-care-delivery/">Empathy and Health Excellence — The Superpower of Care Delivery</a> appeared first on <a href="https://medika.life">Medika Life</a>.</p>
]]></description>
										<content:encoded><![CDATA[
<p id="a060">In today’s data-driven world of medicine, we often equate better care with better technology and better outcomes with advanced diagnostics. And yet, one truth remains: the most powerful force in healing is not found in a test result but in the presence of another human being who truly sees you.</p>



<p id="b0c5">When skilled medical care is guided by empathy, it becomes something greater. It rises beyond competency. It becomes a connection. It becomes care.</p>



<p id="caff">We celebrate survival and measurable outcomes — and we should, however, carry with us what people carry with them long after the diagnosis, such as what was done and how we were treated in the process. It is when a physician takes the time to explain the next steps clearly. It’s the kind gesture from a nurse, the smile behind the mask, the call that came just to check-in. These human elements are not extras. Communication is always part of care.</p>



<p id="9ed9">The most enduring part of the health journey is whether people survive and how they are treated while they try.</p>



<h2 class="wp-block-heading" id="c83f"><strong>People Always, Sometimes Patients</strong></h2>



<p id="48df">People navigating illness rarely rave about systems. They remember moments — how a physician sat and listened, the hand on the shoulder, the honest, unhurried explanation. They speak of kindness, clarity, and dignity. Empathy is not an accessory to care — it is the essence of care. The data backs that up.</p>



<p id="3cb2">A&nbsp;<a href="https://www.medscape.com/viewarticle/physician-empathy-mitigates-patients-chronic-pain-2024a1000ili" rel="noreferrer noopener" target="_blank">Medscape</a>&nbsp;report confirmed that patients with chronic pain experienced significant improvement when treated by physicians who exhibited empathy. In Patient Education and Counseling studies, empathy led to better communication, treatment adherence, and clinical outcomes.&nbsp;<a href="https://info.primarycare.hms.harvard.edu/perspectives/articles/emotional-intelligence" rel="noreferrer noopener" target="_blank">Harvard Medical School research shows that when patients feel heard and understood, they’re more likely to engage in their care and experience improved results.</a>&nbsp;This is more than perception — it’s physiology. Stress levels drop, trust increases, and healing accelerates.</p>



<p id="b6a3">Empathy isn’t a “soft skill.” It’s a clinical tool that improves outcomes and humanizes healthcare. In&nbsp;<a href="https://www.amazon.com/How-Doctors-Think-Jerome-Groopman/dp/B0029LHWKY" rel="noreferrer noopener" target="_blank"><em>How Doctors Think</em></a>,&nbsp;<a href="https://en.wikipedia.org/wiki/Jerome_Groopman" rel="noreferrer noopener" target="_blank"><strong>Jerome Groopman, MD</strong></a><strong>,</strong>&nbsp;reminds us that data does not replace presence:&nbsp;<em>“Statistics cannot substitute for the human being before you; statistics embody averages, not individuals.”</em>&nbsp;Every patient has a backstory — a unique path to the clinic door — and when physicians listen, they gain context and insight.</p>



<p id="0af3">In 1993, the late&nbsp;<a href="https://sps.columbia.edu/person/arnold-gold-md" rel="noreferrer noopener" target="_blank"><strong>Arnold P. Gold, MD</strong></a>&nbsp;of Columbia University, reimagined the start of a medical student’s journey by introducing the “<a href="https://en.wikipedia.org/wiki/White_coat_ceremony" rel="noreferrer noopener" target="_blank">White Coat Ceremony</a>” — a symbol of professionalism and compassion in care. His vision was simple but profound: remind future physicians from day one that medicine is about people, not just pathology.</p>



<p id="f403">The ceremony expanded to nursing and other health professions under the leadership of&nbsp;<a href="https://med.nyu.edu/faculty/richard-i-levin" rel="noreferrer noopener" target="_blank"><strong>Richard I. Levin, MD</strong></a>, Professor Emeritus of Medicine, Department of Medicine at NYU Langone Health and former President and CEO of&nbsp;<a href="https://www.gold-foundation.org/" rel="noreferrer noopener" target="_blank">The Arnold P. Gold Foundation</a>.&nbsp;<em>“We mourn for him,”</em>&nbsp;Dr. Levin said of Dr. Gold<em>, “but as we celebrate his unique life, we can all carry his legacy forward in love.”</em>&nbsp;The White Coat Ceremony, born from one physician’s belief in the power of human connection, can be a learning experience shaping the heart of health professionals.</p>



<h2 class="wp-block-heading" id="6b6c"><strong>The Clinicians Who Lead with Heart</strong></h2>



<p id="df04">This approach is not hypothetical. It’s exemplified by physicians whose names are synonymous with excellence and empathy. These are outstanding physicians I have encountered through the years. They and their office or department teams collectively demonstrate that knowledge and empathic caring create memorable medical experiences.</p>



<p id="7b5d">Empathy is not just a soft skill in healing — it’s a clinical art. It allows a physician to step into the world of their patient and grasp their experience emotionally, intellectually, and behaviorally. However, empathy goes further: it means communicating that understanding, validating the patient’s concerns, and transforming the exchange into therapeutic action. Empathy becomes the bridge between the healer and those seeking to be healed — where listening becomes treatment, and understanding becomes care.</p>



<p id="a64a">This fusion of clinical excellence and genuine empathy distinguishes exceptional physicians in healthcare delivery. These physicians prove that it is possible to be both an outstanding clinical physician with a heart and conscience:</p>



<p id="ec64">A distinguished urologist in New Jersey,&nbsp;<a href="https://www.rwjbh.org/doctors/joseph-v-ditrolio-md/" rel="noreferrer noopener" target="_blank"><strong>Joseph V. DiTrolio</strong></a><strong>, MD</strong>, who only recently announced his retirement from clinical practice, seamlessly integrated innovative techniques with a patient-first philosophy for years. His approachable demeanor — insisting patients call him “Joe” — fosters a comforting environment where individuals feel genuinely valued. Beyond his clinical practice, Dr. DiTrolio has contributed significantly to urology through product development and holds several patents. His commitment to education is evident in his Clinical Professor of Surgery role at New Jersey Medical School.</p>



<p id="840f">Serving as President of Mount Sinai Fuster Heart Hospital and Physician-in-Chief of The Mount Sinai Hospital,&nbsp;<a href="https://profiles.mountsinai.org/valentin-fuster" rel="noreferrer noopener" target="_blank"><strong>Valentin Fuster, MD</strong></a><strong>,</strong>&nbsp;embodies the integration of empathy and leadership. His holistic approach to cardiovascular health — encompassing research, patient care, public health policy and education — has made a global impact. Dr. Fuster’s development of a cardiovascular “polypill” reflects his dedication to accessible patient care, reducing cardiovascular mortality by 33 percent among heart attack survivors. His contributions have been recognized with numerous accolades, including the&nbsp;<a href="https://world-heart-federation.org/?gad_source=1&amp;gclid=Cj0KCQjwqcO_BhDaARIsACz62vPz54aPVgrj6DB1sS8QKWkITyQjbC5-wV1M00XNXGz9mK9kaB__lV0aArNhEALw_wcB" rel="noreferrer noopener" target="_blank">World Heart Federation</a>&nbsp;Lifetime Achievement Award. He makes himself 100 percent available, whether focusing on a patient in the ER awaiting treatment, rebuilding Haiti’s health system, focusing on the needs of communities in Spain, or leading a global professional association. His heart is in everything he engages.</p>



<p id="2623">As Chair of Radiation Oncology at Cooperman Barnabas Medical Center,&nbsp;<a href="https://www.rwjbh.org/doctors/alison-grann-md/" target="_blank" rel="noreferrer noopener"><strong>Alison Grann, MD</strong>,&nbsp;</a>exemplifies the harmonious blend of clinical precision and emotional intelligence. Recognizing the emotional weight of specific diagnoses, she ensures that every patient interaction — from reception to treatment — is infused with warmth and respect. Her leadership fosters an environment where patients feel seen and heard, reinforcing their trust in their care. Dr. Grann’s commitment extends beyond patient care; she actively engages in research and holds a Clinical Assistant Professorship at Rutgers Cancer Institute of New Jersey.</p>



<p id="f856">At Weill Cornell Medicine, <a href="https://weillcornell.org/aocean" target="_blank" rel="noreferrer noopener"><strong>Allyson J. Ocean, MD</strong></a>, stands out as a leading gastrointestinal oncologist and patient advocate. Her compassionate approach clarifies the uncertainties of oncology, deeply resonating with patients. As a co-founder of <a href="https://letswinpc.org/about-us/" target="_blank" rel="noreferrer noopener">“Let’s Win Pancreatic Cancer,”</a> she heeded the counsel of a communication leader &#8211; one of her patients &#8211; the late <a href="https://www.nomore.org/woman-full-life-legacy-anne-glauber/" target="_blank" rel="noreferrer noopener">Anne Glauber</a> &#8211; and turned the pancreatic cancer journey into a broader mission to extend others’ lives. Dr. Ocean’s dedication to patient-centered care is further demonstrated through her roles at The Jay Monahan Center for Gastrointestinal Health and her active involvement in clinical research and education.</p>



<p id="693c">At NYU Langone,&nbsp;<a href="https://nyulangone.org/doctors/1447420369/lawrence-phillips" rel="noreferrer noopener" target="_blank"><strong>Lawrence (Larry) Phillips, MD</strong></a>, delivers exceptional cardiovascular care rooted in empathy and connection. In a specialty where urgency often overtakes interaction, he slows the pace — making listening his first intervention. Patients consistently highlight how seen and heard they feel, a testament to his people-first approach. Board-certified in Internal Medicine and Cardiovascular Disease, Dr. Phillips also serves at NYC Health + Hospitals/Bellevue and is a passionate advocate with the American Heart Association, leading grassroots efforts to expand CPR training and community heart health education.</p>



<figure class="wp-block-image size-large"><img fetchpriority="high" decoding="async" width="696" height="522" src="https://i0.wp.com/medika.life/wp-content/uploads/2025/04/image-1.jpeg?resize=696%2C522&#038;ssl=1" alt="" class="wp-image-20979" srcset="https://i0.wp.com/medika.life/wp-content/uploads/2025/04/image-1.jpeg?resize=1024%2C768&amp;ssl=1 1024w, https://i0.wp.com/medika.life/wp-content/uploads/2025/04/image-1.jpeg?resize=300%2C225&amp;ssl=1 300w, https://i0.wp.com/medika.life/wp-content/uploads/2025/04/image-1.jpeg?resize=768%2C576&amp;ssl=1 768w, https://i0.wp.com/medika.life/wp-content/uploads/2025/04/image-1.jpeg?resize=150%2C113&amp;ssl=1 150w, https://i0.wp.com/medika.life/wp-content/uploads/2025/04/image-1.jpeg?resize=696%2C522&amp;ssl=1 696w, https://i0.wp.com/medika.life/wp-content/uploads/2025/04/image-1.jpeg?resize=1068%2C801&amp;ssl=1 1068w, https://i0.wp.com/medika.life/wp-content/uploads/2025/04/image-1.jpeg?w=1400&amp;ssl=1 1400w" sizes="(max-width: 696px) 100vw, 696px" data-recalc-dims="1" /><figcaption class="wp-element-caption">Photo Credit: Author (left) with (right) Dr. Lawrence Phillips, Associate Professor,&nbsp;<a href="https://med.nyu.edu/medicine" rel="noreferrer noopener" target="_blank">Department of Medicine at NYU Grossman School of Medicine</a>&nbsp;and Medical Director, Outpatient Clinical Cardiology, NYU Langone Health</figcaption></figure>



<p id="36d1">As Chief Medical Officer of WebMD,&nbsp;<a href="https://www.drjohnwhyte.com/bio" rel="noreferrer noopener" target="_blank"><strong>John Whyte, MD, MPH</strong></a>, bridges the worlds of clinical practice, public health, and consumer education — delivering trusted health information with empathy and clarity. He sees patients weekly, grounding his clinical leadership in real-world care. Dr. Whyte’s books, including&nbsp;<a href="https://www.amazon.com/Take-Control-Your-Cancer-Risk/dp/0785240403/ref=sr_1_3?crid=DVQNWSOHI756&amp;dib=eyJ2IjoiMSJ9.Xswg0kTkFDJ8jnKafCdQqZCGkVngg0HWQ_YIqGoEQhT-8CFwphVBiaI_xZ1Nq-Q8dH2hSBujY_dxLvaMecyoZvuINx4iksvtwsx7dHgcKJenlLC7j65RMNhU7GLJE3uE5-W1M2FOqWDrYwK0P2h39RVg1KnTIsBUmf59ziNeH2zJuCiTUJoEW-qpWzXhYD3v-ybBe8MEsREoXPOyitbHsoYYGa1h1V54r35oq3osi7I.oIEU1glESpeAZVapFpX8rUdOIzzwkeepknOQjeCBKto&amp;dib_tag=se&amp;keywords=John+Whyte&amp;qid=1743892104&amp;s=books&amp;sprefix=john+whyte%2Cstripbooks%2C93&amp;sr=1-3" rel="noreferrer noopener" target="_blank"><em>Take Control of Your Cancer Risk</em></a>&nbsp;and&nbsp;<a href="https://www.amazon.com/This-Normal-John-Whyte-2011-08-31/dp/B01K0Q4VMG/ref=sr_1_1?crid=46HW5UXLYVFB&amp;dib=eyJ2IjoiMSJ9.MzrqjDy-WASVGnAJ3Nrn7CKetow9msJSlegQIKMZsTvGjHj071QN20LucGBJIEps.bnlp-MC74RFnhVdsy0g5VuX8KO0RYp48cbl82xPRoKg&amp;dib_tag=se&amp;keywords=John+Whyte+Is+this+Normal%3F&amp;qid=1743892142&amp;s=books&amp;sprefix=john+whyte+is+this+normal+%2Cstripbooks%2C67&amp;sr=1-1" rel="noreferrer noopener" target="_blank"><em>Is This Normal?</em></a>, reflect his commitment to guiding people through their health journeys with candor and compassion. A former leader at the Food and Drug Administration and the Centers for Medicare &amp; Medicaid Services, he brings a public health lens to his work, ensuring each message empowers and every patient feels seen.</p>



<p id="6cf2">These physicians exemplify how empathy and medical expertise transform patient care and cement community admiration. They do more than heal — they restore faith in the system and dignity to the patient’s journey.</p>



<h2 class="wp-block-heading" id="28e8"><strong>Stop Calling Us Beneficiaries — We’re Paying Customers</strong></h2>



<p id="c59c">Empathy must extend beyond the individual clinician and become a defining trait of our health system, from how we write policies to how we answer phones.</p>



<p id="7f65">Too often, people in need of care face frustration instead of compassion. Insurance denials, confusing bills, impersonal communications — these compound the stress of illness. But forward-thinking organizations are challenging that norm.</p>



<p id="bb83">In the health industry, we often claim that the patient is at the center of care and that naïve Band-Aid should be ripped off. The murder of&nbsp;<a href="https://en.wikipedia.org/wiki/Killing_of_Brian_Thompson" rel="noreferrer noopener" target="_blank">Brian Thompson</a>&nbsp;is a tragic and terrifying wake-up call to the US health insurance industry. However, the headlines have receded into the background, and with the passing news cycle, so has the urgency to evolve the care coverage system.</p>



<p id="fead">The public reaction to Thompson’s death gives us an essential opportunity to recognize that we have lost the trust of many of the people the sector seeks to serve. The trauma of this terrible moment can be addressed in one of two ways — avoidance or engagement. This event must catalyze health companies to reassess their approach to patient care and public trust.</p>



<p id="abab">Profitability and service to the patient aren’t two separate outcomes. Investing in interventional care and providing that care are also inextricably intertwined. The industry should consider several key recommendations. Some companies do what is needed to treat “beneficiaries” and “members” more like paying and valued customers.</p>



<p id="1611"><a href="https://www.hca.wa.gov/assets/perspay/empathy-services-for-beneficiaries.pdf" rel="noreferrer noopener" target="_blank">MetLife</a>&nbsp;and&nbsp;<a href="https://www.guardianlife.com/empathy" rel="noreferrer noopener" target="_blank">Guardian Life</a>&nbsp;have partnered with&nbsp;<a href="https://www.empathy.com/about" rel="noreferrer noopener" target="_blank">Empathy</a>, a platform designed to support beneficiaries through bereavement. These companies understand that losing a loved one is not just a claims process; it’s a human-customer-like — experience. They’ve committed to making that moment one of guidance, not bureaucracy.</p>



<p id="0183">Operationally, insurance teams must rethink how they respond to prior authorization requests. What if instead of a hard “<em>No</em>,” a representative said,&nbsp;<em>“Let’s see what we can do together”?</em>&nbsp;That’s not just good service. It lowers people’s tension and is good medicine. When insurance becomes a partner, not a process, people feel seen — not shuffled.</p>



<p id="1b78">In the broader system, patient navigation — first championed by a physician who became an authority on race, poverty, and cancer —&nbsp;<a href="https://cancerhistoryproject.com/people/harold-freeman-cutting-cancer-out-of-harlem/" rel="noreferrer noopener" target="_blank">Harold Freeman, MD</a>&nbsp;— shows that outcomes improve when people have support navigating the maze of care. Especially in underserved communities, navigators ensure that empathy is not dependent on privilege. It becomes a universal right.</p>



<h2 class="wp-block-heading" id="9fa6"><strong>Designing for Dignity</strong></h2>



<p id="90d5">Empathy isn’t just something we express; it’s something we can design. We can build it into:</p>



<ul>
<li>The architecture of clinics that create calm, not chaos</li>



<li>The approach we take in helping patients complete registration</li>



<li>The way we train AI and LLMs to converse with respect</li>



<li>The tone of insurance letters that minimize legalese and empathize with care</li>



<li>The workflows that give nurses and doctors more time to connect</li>
</ul>



<p id="e489">We must think of empathy not as reactive but as proactive. It must be embedded in systems, supported by policy, and measured by efficiency and experience. Empathy differentiates between treating a condition, focusing on a body part, and healing a person.</p>



<h2 class="wp-block-heading" id="144f"><strong>The System’s Soul</strong></h2>



<p id="c807">At its best, medicine is more than what we do — it is about how we do it. Empathy does not appear on a chart and is not coded into billing. But its absence is always felt, and its presence potentially transforms the entire care experience.</p>



<p id="3fb5">Empathy binds us back to our purpose, whether we are physicians in a clinic, nurses in an ICU, call center agents helping a customer navigate issues with a denied claim, or patient navigators walking with someone through a new diagnosis.</p>



<p id="658c">As we move into the future of AI, automation, digital health, and remote care, our most vital technology remains human connection. Our most critical clinical protocol is compassion.</p>



<p id="2cc5"><strong><em>Empathy is not a soft idea. It is medicine’s soul in action.</em></strong></p>
<p>The post <a href="https://medika.life/empathy-and-health-excellence-the-superpower-of-care-delivery/">Empathy and Health Excellence — The Superpower of Care Delivery</a> appeared first on <a href="https://medika.life">Medika Life</a>.</p>
]]></content:encoded>
					
		
		
		<post-id xmlns="com-wordpress:feed-additions:1">20978</post-id>	</item>
		<item>
		<title>A Vignette of Life as a Pediatric Cancer Mom</title>
		<link>https://medika.life/a-vignette-of-life-as-a-pediatric-cancer-mom/</link>
		
		<dc:creator><![CDATA[Erica Olenski]]></dc:creator>
		<pubDate>Thu, 17 Mar 2022 02:07:21 +0000</pubDate>
				<category><![CDATA[Babies & Children]]></category>
		<category><![CDATA[Cancers]]></category>
		<category><![CDATA[Editors Choice]]></category>
		<category><![CDATA[General Health]]></category>
		<category><![CDATA[Health News and Views]]></category>
		<category><![CDATA[Mental Health]]></category>
		<category><![CDATA[Patient Voice]]></category>
		<category><![CDATA[Patient Zone]]></category>
		<category><![CDATA[Cancer]]></category>
		<category><![CDATA[Empathy in Healthcare]]></category>
		<category><![CDATA[Erica Johansen]]></category>
		<category><![CDATA[patient voice]]></category>
		<category><![CDATA[pediatric cancer]]></category>
		<category><![CDATA[Pediatric Diseases]]></category>
		<guid isPermaLink="false">https://medika.life/?p=14658</guid>

					<description><![CDATA[<p>A hugely moving insight into the life of a parent of a pediatric cancer victim.  We always feel deeply for young patients, but the parents bear their own kind of trauma.</p>
<p>The post <a href="https://medika.life/a-vignette-of-life-as-a-pediatric-cancer-mom/">A Vignette of Life as a Pediatric Cancer Mom</a> appeared first on <a href="https://medika.life">Medika Life</a>.</p>
]]></description>
										<content:encoded><![CDATA[
<p>Her faded sweatshirt read, “we need darkness to see the stars.”</p>



<p>I met Ashley yesterday while hiding in the hallway just outside our room. I had been fighting with August for at least 20 minutes to keep his pulse ox on his toe and oxygen connected to his trach. I was at my limit. I had been crying and needed to step away for a moment. You know the headspace you get when trying to console a newborn at 3 a.m. for the 20th time? That’s where I was. Except I was fighting with a three-year-old cancer and stroke survivor. I was exhausted and defeated. He was relentless.</p>



<p>Ashley was sitting on the ground in the doorway of the room next to us, encouraging her son, Pierce, to take steps in the hallway.</p>



<p>Meeting parents on the oncology floor is an exceptionally weird experience. It feels a little like a college dorm in some ways. Everyone is shuffling around in their sweats and pajamas, bags under their eyes, and usually mumbling something that sounds like, “more coffee.” The whole vibe is strangely familiar but in a backward, twisted kind of way. More like a dorm in The Upside Down from&nbsp;<em>Stranger Things</em>&nbsp;or the nightmare version of&nbsp;<em>déjà vu</em>.</p>



<p>But, Ashley and I exchanged smiles that made space for us to exchange pleasantries.</p>



<p>“How long have you guys been here?” I asked, making small talk.</p>



<p>“About six and a half weeks. You?” she replied.</p>



<p>“Only a week or so this time, but we spent many nights here on this floor a few years ago,” I explained.</p>



<p>I know the darkness that her shirt referenced. I’ve slept in it. I’ve tried to manifest positive outcomes with my tarot cards in it. I’ve been consumed by it. Nearly three years ago, the life that I had poured myself into creating most of my adulthood was obliterated within a few hours. Thankfully, that memory is burning into my mind more like a dream these days than a threat, but I still recognize it when I see it.</p>



<p>“He’s so sweet. How old is he?” I asked.</p>



<p>“He just turned two at the new year. He was diagnosed just a few days before his birthday.”</p>



<p>“Do you mind me asking about his diagnosis?” I asked, nodding to Pierce.</p>



<p>“He has stage four liver cancer. But it has metastasized to his lungs,” she said.</p>



<p>“I am so sorry. Can I give you a hug?” I asked. I could see her vulnerabilities flickering in that moment.</p>



<p>“Yes!” she replied without hesitating. We became instant friends.</p>



<p>As we got to know more about each other, it occurred to me that this was still their first stay in the hospital since finding out the news. The first six weeks. The first six weeks of this new life that only a few people come to know. Where were we during the first six weeks? They are a blur now, but there are things I won’t forget in that time. Those early days stay with you even if you can’t remember them in detail.</p>



<p>I do remember the layout of the room in the trauma ICU. I remember the consultation room we were taken to learn about August’s prognosis. That was the room in the back corner of the floor so no one could hear me scream, at least not clearly. I remember the couch I laid on during his surgery, where my sister rubbed my back and ran her fingers through my hair as I lay curled in a trance.</p>



<p>I remember the neuro recovery room we stayed in after he was stabilized from surgery. I remember meeting August’s oncologist for the first time and being told “he already knew who we were” and that he had been following this case from the moment he was admitted. I remember asking him if trying to continue breastfeeding would give my son a better chance at beating the odds ahead of him.</p>



<p>Ashley is just starting this journey with her son, but I could see the burning flame inside of her. She is still in those first six weeks. Her soul has been lit on fire. She is a mom fighting for her son and demonstrating to him at the same time his capacity to fight as well. She is evolving, in real-time, into a force that will power her family for the long journey ahead. I see myself in her. I was in her shoes nearly three years ago and still am stoking that fire.</p>



<p>You don’t have children and expect them to traverse an obstacle like cancer. You expect scrapes, bruises, maybe broken bones. At baby showers, you joke about “all the trouble your little boy will get into,” but you aren’t suggesting they fight for their life. You expect bullies and heartbreak and lessons in trust. You don’t expect what comes with a cancer diagnosis, like chemo and radiation. Those kinds of things aren’t for children.</p>



<p>Our day eventually blurred into night, which you don’t notice the same way when you’re in the hospital. I swear that time moves differently here. Somewhere in between Twitter searches for updates on the impending world war, the late-winter ice storm, and respiratory treatments, I fell asleep. I woke to muted voices casting shadows on the wall. It was 3 a.m. but something was going on.</p>



<p>I stepped out of our door to see the clinically bright lights on in my new friend’s room. The door was wide open and a team of hospital staff was in the hallway. Somehow, I got a text from Ashley.</p>



<p>“I’m sorry if I’m keeping you up,” she said.</p>



<p>How on Earth did she have the ability to text me while her son was the center of everything in that moment? I should be the least of her worries.</p>



<p>Stunned, I replied, “Omg, no worries at all. Is everything okay? Do you need anything?”</p>



<p>“No, we are headed to the ICU,” she explained.</p>



<p>“I am so sorry, Ashley,” I replied. I know better now than to say anything more in these moments.</p>



<p>“I’m so worn out. How did you do it?” she asked.</p>



<p>I typed out so many responses to that question. This time, for these circumstances, she needed validation and a reminder of self-care before anything. She needed to know she is not alone. She’s allowed to feel scared, tired, and sad. And she’s allowed to take care of herself.</p>



<p>I said, “It is exhausting. You need rest. Will you be able to get some?”</p>



<p>What I didn’t say – but wanted to tell her – is that truthfully, I didn’t “do it.” I did what I had to do to support August and our family, but any sense of accomplishment about what we experienced feels inauthentic; for me at least. The primary accomplishment belongs to August.</p>



<p>The only genuine answer I could give is that I just survived; alongside my son. That was all I could do. And that is enough.</p>



<p>And she will do it too.</p>
<p>The post <a href="https://medika.life/a-vignette-of-life-as-a-pediatric-cancer-mom/">A Vignette of Life as a Pediatric Cancer Mom</a> appeared first on <a href="https://medika.life">Medika Life</a>.</p>
]]></content:encoded>
					
		
		
		<post-id xmlns="com-wordpress:feed-additions:1">14658</post-id>	</item>
	</channel>
</rss>
