The deaths of small children do not move us beyond tears and platitudes to policy action. What will? We are lost if we don’t demand a significant change in gun access policy after reading how a two-year-old wandered lost and frightened after both parents were shot and killed. After people going food shopping in Buffalo were slain. After people going to relax at a club in Colorado Springs were brutally murdered. How about the deaths at Walmart in Chesapeake, Virginia? Empathy drained. Courageous political action is tossed aside for preferred partisan politics.

Past policies passed in the bi-partisan Senate move are weak compromises.  They are face-saving actions for both major parties, not life-sparing policy moves that will reduce the death toll from gun violence. We need to make a move that will save lives, requiring a complete ban on automatic weapons. The Senate’s bipartisan gun deal includes additional mental health funding, increased school safety, more crisis intervention programs, and incentives for states to align juvenile records in the National Instant Criminal Background Check System. But automatic, high-powered velocity weapons – weapons of war – continue to be accessible.

High-Powered Weapon Purchases Are Climbing

In 1994, President Bill Clinton signed an assault-weapons ban, which resulted in the reduction of the AR-15 and similar semiautomatic rifles sales. The Ban only covered a 10-year window, in which mass shootings were down dramatically. When the assault-weapons ban expired 10 years later, gun manufacturers filled the production pipeline and sales rose. Recently – and tragically – the AR-15 has been at the scene of almost every mass shooting to hit the headlines in recent years. It’s design – the spin of the bullet – and firepower make killing as easy as pressing the trigger again and again until its 30-bullet magazine is spent.

The United States is witnessing a record year of gun violence – more than 600 mass shootings in 2022. The pressure is on lawmakers to enact meaningful reforms. But, little action is expected to curb this continued slaughter of the innocent.

Weapons of War are Designed for One Purpose – to Kill

For six years as a military paratrooper and combat medic, I carried an M-4, the preferred weapon of war for infantry entering combat.  The M-4 is a smaller, more convenient version of the M-16.  These are the weapons of war used in past mass shootings.  Some express misguided comfort that the A-15 is semi-auto only, and the M16 is fully automatic. But in combat situations, soldiers rarely fire on automatic. Few do, for every bullet counts.  Let’s stop calling these rifles “automatic.”  They are weapons created for war – weapons of war to wound and kill others.

Civilians are the Victims of this Gun-Epidemic War

We must heed the words of the onsite physician first responder in Highland Park, Dr. David Baum: 

“The people who were (killed) were blown up by that gunfire … blown up. The horrific scene of some bodies is unspeakable for the average person. I’ve never served, but those are wartime injuries. Those are what are seen in victims of war, not victims at a parade.”

Dr. Roy Guerrero, a healer of children who rushed to Uvalde Memorial Hospital after the massacre of 19 children and two teachers at Robb Elementary School in Texas, testified during a congressional hearing on gun violence:

“I chose to be a pediatrician. I chose to take care of children. “Keeping them safe from preventable diseases I can do. Keeping them safe from bacteria and brittle bones, I can do. But making sure our children are safe from guns, that’s the job of our politicians and leaders.”

The words of Drs Baum and Guerrero echo a simple truth: our politicians are too removed from the steady death toll and its horror to fulfill their responsibilities in protecting the nation. America is at war within itself. Our political leaders decline to call for a ceasefire despite rising body count.  Let’s call these weapons what they are – weapons of war. 

The AR-15-styled weapon was used in the Sandy Hook massacre, the Aurora theater massacre, the San Bernardino massacre, Marjory Stoneman Douglas High School in Parkland, FL, mass murder in Buffalo, NY, Uvalde, Texas, Highland Park, IL and the most recent shootings. What’s the difference between the AR-15 and its military counterpart, the M16?  They are assault weapons that hold a 30-bullet magazine and offer users the same firepower. Their killing capacity, like their power, is equal.

Congress must hold some responsibility for the murders around the nation. If its members cannot agree to protect the nation’s youngest citizens who sit in classrooms eager to learn to read, count, and play team sports, then they can either sharpen their empathy skills and feel people’s pain or consider their time in public office as a failure.

Congress Must See the Wounds of the Dead and Suffering

How can Congress show a higher degree of responsibility – a heightened connection to people’s enduring pain – physical and psychological?  Look and remember!  Each day, they should begin their sessions looking at the actual photos of those shot – the wounded and killed.  They should learn about their injuries, urgent care, and rehabilitation.  Also, each purchase of an AR-15 should require liability insurance.  Where there is no economic impact, death becomes cheap. For almost certain, once insurance companies are paying out claims, something is likely to change.

With less than 5 percent of the world’s population, the US has almost 50 percent of the world’s civilian-owned guns. The US ranks number one in firearms per capita. Our nation also has the highest homicide-by-firearm rate among the world’s most developed nations. Forget the reasons used to explain-away mass shootings; at the scene of each of these horrific acts are often weapons of war.

Americans need patriotic public service advocates in Washington, DC, who place the survival of its citizens at the forefront of their efforts.  Weapons of war, such as AR-15s, have no place in people’s home arsenals. Its bullet’s caliber rips its target apart – going in small and exiting the size of a fist. Members of Congress and their staff must be required – regardless of their political party affiliation– to see the destructive path of an AR-15 caliber bullet after every mass shooting – see the faces and hear the screams of the families impacted until those cries echo in their heads.  They must identify with the continued horror the first responders will likely experience for years.

Years after my military service, I remember the faces of the wounded and dead. I remember stemming blood from their gunshot wounds.  I hear their voices calling for distant mothers or asking if they will die. What was training and instinct – the ability to separate from the swirl around me and perform under fire – now is a movie reel that plays in my head. 

I cherish life, my role as a healer, and now, my responsibilities as a health communicator. But each moment in harm’s way was never about policy; it was about survival. Now, we are all in harm’s way wherever we go. Congress, you must transcend your political differences and imagine the cries of children murdered, calling hopelessly beforehand for their parents unable to reach out. Ban assault weapons. Ban weapons of war.

[This post was originally published on July 22nd and has now been updated to reflect the recent shootings the continued lack of Federal government action to guard its citizens’ safety.]

The post If Deaths of Small Children Do Not Move Us to Action What Will? appeared first on Medika Life.

The 25-year-old blogger and college student has autism and several chronic illnesses, and with the support of her grandparents and friends, who help her access a complex network of social services, she lives relatively independently in Johnson City, Tennessee.

“If something happens to them, I’m not certain what would happen to me, especially because I have difficulty with navigating things that require more red tape,” she said.

Johnson said she hasn’t made plans that would ensure she receives the same level of support in the future. She especially worries about being taken advantage of or being physically harmed if her family and friends can’t help her — experiences she’s had in the past.

“I like being able to know what to expect, and thinking about the future is a bit terrifying to me,” she said.

Johnson’s situation isn’t unique.

Experts say many people with intellectual and developmental disabilities do not have long-term plans for when family members lose the ability to help them access government services or care for them directly.

Families, researchers, government officials, and advocates worry that the lack of planning — combined with a social safety net that’s full of holes — has set the stage for a crisis in which people with disabilities can no longer live independently in their communities. If that happens, they could end up stuck in nursing homes or state-run institutions.

“There’s just potential for a tremendous human toll on individuals if we don’t solve this problem,” said Peter Berns, CEO of the Arc of the United States, a national disability-rights organization.

About one-quarter of adults in the U.S. live with a disability, according to the Centers for Disease Control and Prevention. Nearly three-quarters of Americans with disabilities live with a family caregiver, and about one-quarter of those caregivers are 60 or older, according to the Center on Developmental Disabilities at the University of Kansas.

But only about half of families that care for a loved one with disabilities have made plans for the future, and an even smaller portion have revisited those plans to ensure they’re up to date, said Meghan Burke, an associate professor of special education at the University of Illinois in Urbana-Champaign.

“Engaging in it once is good, right? But you can’t only engage in it once,” she said. “It’s a living document, because things change, people change, circumstances change.”

Burke’s research has found several barriers to planning for the future: financial constraints, reluctance to have hard conversations, trouble understanding government services. Creating plans for people with disabilities also is a complex process, with many questions for families to answer: What are their relatives’ health needs? What activities do they enjoy? What are their wishes? Where will they live?

Burke has firsthand experience answering those questions. Her younger brother has Down syndrome, and she expects to become his primary caregiver in the future — a situation she said is common and spreads the work of caregiving.

“This is an impending intergenerational crisis,” she said. “It’s a crisis for the aging parents, and it’s a crisis for their adult offspring with and without disabilities.”

Nicole Jorwic, chief of advocacy and campaigns for Caring Across Generations, a national caregiver advocacy organization, said the network of state and federal programs for people with disabilities can be “extremely complicated” and is full of holes. She has witnessed those gaps as she has helped her brother, who has autism, access services.

“It’s really difficult for families to plan when there isn’t a system that they can rely on,” she said.

Medicaid pays for people to receive services in home and community settings through programs that vary state to state. But Jorwic said there are long waitlists. Data collected and analyzed by KFF shows that queue is made up of hundreds of thousands of people across the country. Even when people qualify, Jorwic added, hiring someone to help can be difficult because of persistent staff shortages.

Jorwic said more federal money could shorten those waitlists and boost Medicaid reimbursements to health care providers, which could help with workforce recruitment. She blamed chronic underinvestment in Medicaid disability services for the lack of available slots and a dearth of workers to help people with disabilities.

“It’s going to be expensive, but this is four decades of funding that should have been done,” she said.

Congress recently put about $12.7 billion toward enhancing state Medicaid programs for home- and community-based services for people with disabilities, but that money will be available only through March 2025. The Build Back Better Act, which died in Congress, would have added $150 billion, and funding was left out of the Inflation Reduction Act, which became law this summer, to the disappointment of advocates.

Jeneva Stone’s family in Bethesda, Maryland, has been “flummoxed” by the long-term planning process for her 25-year-old son, Rob. He needs complex care because he has dystonia 16, a rare muscle condition that makes moving nearly impossible for him.

“No one will just sit down and tell me what is going to happen to my son,” she said. “You know, what are his options, really?”

Stone said her family has done some planning, including setting up a special needs trust to help manage Rob’s assets and an ABLE account, a type of savings account for people with disabilities. They’re also working to give Rob’s brother medical and financial power of attorney and to create a supported decision-making arrangement for Rob to make sure he has the final say in his care.

“We’re trying to put that scaffolding in place, primarily to protect Rob’s ability to make his own decisions,” she said.

Alison Barkoff is acting administrator for the Administration for Community Living, part of the U.S. Department of Health and Human Services. Her agency recently released what she called a “first ever” national plan, with hundreds of actions the public and private sectors can take to support family caregivers.

“If we don’t really think and plan, I’m concerned that we could have people ending up in institutions and other types of segregated settings that could and should be able to be supported in the community,” said Barkoff, who noted that those outcomes could violate the civil rights of people with disabilities.

She said her agency is working to address the shortages in the direct care workforce and in the supply of affordable, accessible housing for people with disabilities, as well as the lack of disability-focused training among medical professionals.

But ending up in a nursing home or other institution might not be the worst outcome for some people, said Berns, who pointed out that people with disabilities are overrepresented in jails and prisons.

Berns’ organization, the Arc of the United States, offers a planning guide and has compiled a directory of local advocates, lawyers, and support organizations to help families. Berns said that making sure people with disabilities have access to services — and the means to pay for them — is only one part of a good plan.

“It’s about social connections,” Berns said. “It’s about employment. It’s about where you live. It’s about your health care and making decisions in your life.”

Philip Woody feels as though he has prepared pretty well for his son’s future. Evan, 23, lives with his parents in Dunwoody, Georgia, and needs round-the-clock support after a fall as an infant resulted in a significant brain injury. His parents provide much of his care.

Woody said his family has been saving for years to provide for his son’s future, and Evan recently got off a Medicaid waitlist and is getting support to attend a day program for adults with disabilities. He also has an older sister in Tennessee who wants to be involved in his care.

But two big questions are plaguing Woody: Where will Evan live when he can no longer live at home? And will that setting be one where he can thrive?

“As a parent, you will take care of your child as well as you can for as long as you can,” Woody said. “But then nobody after you pass away will love them or care for them the way that you did.”

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