We usually think about outdoor air quality, but sometimes the air in our kitchens is even more dangerous. Did you ever think that home cooking could be dangerous for you? Not in terms of spills or burns, but the air you breathe?

Understanding the Problem

People in the UK spend about 90% of their time indoors, but most air pollution rules only focus on outdoor air. This is a serious problem because many things we do at home, especially cooking, create airborne pollutants that can harm our health.

The INGENIOUS project at the University of York is studying what happens to indoor air quality when we cook. Their research examines homes where many families experience poor air quality both indoors and outdoors.

What’s in the Air When You Cook?

Cooking releases several types of pollutants into your home’s air. The main ones are fine particulate matter (PM2.5), nitrogen dioxide, volatile organic compounds, and formaldehyde. Did you ever think you would be breathing formaldehyde in your home as a result of how you cooked?

PM2.5 is especially concerning. These tiny particles can travel deep into your lungs and even get into your bloodstream. One study found that pan-frying chicken produced PM2.5 levels of 92.9 micrograms per cubic meter. The outdoor air quality standard for PM2.5 is 50 micrograms per cubic meter, so some cooking methods can more than double that amount in your kitchen.

Gas stoves create another issue. They release nitrogen dioxide (NO2), which can irritate your lungs and is linked to asthma and other breathing problems. If you don’t use a range hood, cooking with gas can add 25% to 33% more nitrogen dioxide to your indoor air in summer, and even more in winter. In four out of ten homes studied, gas burners released enough nitrogen dioxide to go over the health standards set for outdoor air.

Who’s Most at Risk?

Young children, older adults, and people with asthma or heart and lung diseases are especially at risk.

The numbers are worrying for children with asthma. A 2006 study found that pollution from gas stoves more than doubles the chances of wheezing and shortness of breath for kids with asthma who live in apartments. Another study showed that children with asthma who are exposed to higher nitrogen dioxide levels use their rescue inhalers 14% more often.

Some communities are affected more than others. In Washington State, Black people are exposed to PM2.5 levels that are over 1.3 times higher than White people, and Asian people face levels 1.5 times higher. American Indian and Alaska Native adults have the highest asthma rates at 18%. And there are cultural factors at work here, as well as the type of cooking you do indoors and the airflow in your home.

The Long-Term Health Impact

Being exposed to PM2.5 for a long time raises the risk of early death for people with heart or lung disease. It is also linked to chronic heart and lung problems, effects on brain health, and pregnancy issues.

Around the world, household air pollution causes 6.7 million early deaths each year. The main health problems are stroke, heart disease, chronic obstructive pulmonary disease (COPD), and lung cancer.

Use Your Range Hood Every Time You Cook

This is the most important step you can take. A range hood that works well and vents air outside can remove 50% to 70% of pollutants if you use it correctly. But studies show that people use their range hoods only 36% of the time in houses and 28% in apartments.

If your range hood only recirculates air back into the kitchen instead of venting it outside, you should open windows or use another exhaust fan.

Cook on Your Back Burners

Range hoods work best when you use the back burners because they are more fully covered by the hood. Cooking on a single back burner with the hood on low speed usually captures 50% to 70% of the pollutants.

Open Windows and Doors

If you do not have a range hood, opening windows or doors can help. One study found that opening both the front and back doors for ventilation creates strong airflow that can remove over 95% of cooking pollutants in just 10 minutes.

Consider Switching to Electric

All cooking creates some pollution, but gas stoves cause extra problems by releasing nitrogen dioxide, carbon monoxide, and benzene. A recent Stanford study found that switching to electric stoves could lower nitrogen dioxide exposure by over 50% across the country. One of the problems, of course, is that electricity or cooking with electricity is more expensive than using gas.

Choose Your Cooking Methods Wisely

Pan-frying and stir-frying at high temperatures make much more pollution than boiling, steaming, or using an air fryer. When you can, choose cooking methods that use lower temperatures.

Why This Matters Now

About half of the people surveyed did not know that cooking creates unhealthy air pollutants. But after learning about the health risks, 64% said they would think about using their ventilation devices more often.

People are spending more time at home. In 2021, Americans spent about 62% of their waking hours at home, up from 50% in 2019. With more people cooking at home, kitchen ventilation is more important.

Newer homes are built to be more energy-efficient, so there is less air exchange with the outdoors. Without good ventilation, pollutants can get trapped inside and build up to harmful levels. In homes with poor ventilation, indoor smoke can have fine particle levels 100 times higher than what is considered safe.

The Bottom Line

Cooking is a normal part of daily life, but it shouldn’t harm your health. By learning what pollutants are released when you cook and taking simple steps to ventilate your kitchen, you can protect yourself and your family.

The research is clear: using a range hood every time you cook, opening windows for airflow, cooking on back burners, and thinking about cleaner cooking technologies can really help. These are not complicated or expensive changes. They are simple habits that can greatly improve the air quality in your home and your health as well.

The post Home Cooking Means Hidden Health Dangers for You appeared first on Medika Life.

He is a second-generation physician who prefers to be called by his first name, honoring his father, “the original Dr. Grossmann.”  In his own right, he’s a trailblazer at the nexus of surgical care and innovation. Born in Caracas, Venezuela and carrying forward his family’s medical legacy, he completed his surgical residency in Ann Arbor, Michigan, before establishing his practice in New England, serving as a general, trauma, advanced laparoscopic, and robotic surgeon at Portsmouth Regional Hospital in New Hampshire and Eastern Maine Medical Center.

Rafael is frequently linked to his groundbreaking use of Google Glass during surgery. But to define him by that singular innovation is to miss the deeper force driving his work: an unwavering belief that technology must serve—not supplant—the doctor–patient relationship. In recent interviews and longstanding contributions across digital health platforms, Rafael shares an increasingly urgent message: humility and empathy are not soft skills of the past—they are foundational elements of the future.

Proximity Over Performance
Rafael’s approach to technology is both deliberate and human-centered. He integrates AI, extended reality, and telehealth into care environments with one goal: to foster proximity between healer and patient. Whether bringing loved ones into ICU rooms through virtual tools, using augmented reality to teach medical trainees, or deploying wearables to enhance surgical insight, his purpose is consistent: technology must deepen the human connection.

“If the technology doesn’t enhance the connection between physician and patient,” Dr. Grossmann notes, “it has no role in care.”

That conviction reflects a broader truth in modern medicine: innovation must be guided by intention. The impact of a new tool is not measured by its complexity, but by its capacity to sharpen listening, expand compassion, and build trust. In this view, humility is not an abstract virtue—it is a clinical competency.

Humility as a Clinical Skill
While empathy is increasingly recognized as a measurable component of quality care, humility remains underappreciated. Yet humility—the ability to acknowledge limits, listen fully, and elevate the patient’s needs—may be one of the most critical skills a clinician can develop.

Rafael challenges medical education to do more than train for outcomes; he calls for cultivating presence. In trauma settings and academic halls alike, he models humility not as passivity, but as active, intentional leadership. It takes courage, he says, to be honest with patients—not just about diagnoses, but about uncertainty.

“The best medicine,” he reflects, “comes from presence, not only performance.” In high-tech environments where algorithms analyze and recommend, the clinician’s humility may be the most human—and healing—intervention available.

Empathy, Elevated by Innovation
To Rafael, empathy and innovation are not opposites. When used wisely, technology can extend—not replace—the clinician’s presence. Telemedicine platforms become conduits for comfort. Immersive simulations train for compassion. Data becomes dialogue when interpreted with care.

This mindset is especially important now. Patients today may have unprecedented access to information, yet they often feel unseen. In an age of instant answers, the experience of being truly heard remains rare. Rafael reminds health-sector leaders and policymakers that no system—however advanced—can succeed if it forgets the people it was designed to serve.

Clinicians stand at a crossroads as health delivery accelerates toward predictive analytics and AI-driven decisions. Technology offers an undeniable opportunity: greater access, improved accuracy, and better outcomes. But these advances must be matched by a return to the timeless principles of great medicine—empathy, humility, and presence.

Rafael’s work represents a rare blend of innovation and introspection. His willingness to explore the boundaries of digital medicine is matched by a steadfast insistence that patients remain at the center. The future of care, he contends, won’t be defined by who uses the most sophisticated technology, but by who uses it to deepen human connection.

Rafael is not focused on being remembered for the tools he introduced. He hopes to be known for something quieter: helping patients and clinicians feel seen, heard, and supported.

In an era when health systems are rethinking priorities, medical schools are reassessing competencies, and companies are racing to redefine care delivery, the voices of clinicians like Rafael’s matter more than ever. Humility, after all, is not the opposite of expertise—it is its most authentic expression.

The post “Humility” Is Cutting-Edge Medicine: What a Physician Innovator Teaches Us About Patient-Centered Care appeared first on Medika Life.

It’s a brilliant question — practical, personal, and rooted in lived experience.

We’ve all been there: eating blueberries, sipping matcha, nibbling dark chocolate, hoping it’ll offset the chaos of our lives.

We’re told that foods like blueberries are miracle cures — that if we just eat clean enough, we can outrun stress.

But here’s what I’ve seen in practice:

You can’t eat your way out of chaos.

→ Why Everyone’s Brain Feels Broken Right Now — And What I Tell My Patients

Still, food matters. Deeply.

Let’s unpack what antioxidant-rich foods can do for a burned-out brain — and where their power ends.

(P.S. That “Let food be thy medicine” quote? Not really Hippocrates.)

What Are High-ORAC Foods, Anyway?

ORAC, short for Oxygen Radical Absorbance Capacity measures how well a food can neutralize free radicals (unstable molecules that damage cells, accelerate aging, and promote inflammation).

Some of the highest-ORAC foods include:

These are some of the most evidence-based foods that fight burnout by countering oxidative stress and inflammation.

Consuming these foods regularly can make your body more efficient at extinguishing the “metabolic fires” triggered by stress, poor sleep, and inflammation.

So yes, these foods help.

But they’re not enough.

Stress, Sleep, and the Limits of Diet

Take a real-world example:

A 49-year-old entrepreneur came to me burned out.

She exercised.

Ate mostly plants. Drank matcha. Took magnesium.

Still exhausted. Irritable. Foggy.

Why?

She was sleeping five hours a night, answering emails at midnight, skipping meals, and never pausing.

Her nervous system was locked in a state of fight-or-flight.

And even the most antioxidant-rich foods won’t restore the parasympathetic state we need to digest, repair, and think clearly.

Nutrition supports healing, but it doesn’t initiate it when the system is overloaded.

Curious how patients actually recover from burnout? My ebook, What Dying Patients Taught Me About Living, shares what I’ve seen firsthand.
👉 [Get your copy here]

What Antioxidants Can Do

So what can antioxidants do?

A nutrient-dense, antioxidant-rich diet can help:

• Lower CRP (a marker of inflammation)
• Improve cognition under stress.
• Stabilize mood via the gut-brain axis.
• Protect mitochondria from oxidative stress.
• Support neurogenesis (yes, new brain cell growth)

These are some of the most powerful antioxidant benefits for the brain — and they’re magnified when paired with rest and rhythm.

One 2023 study found that a Mediterranean-style, antioxidant-rich diet was linked to a lower risk of depression.

Related: 10 Tiny Habits That Quiet Your Mind — Without Meditating

Another study showed that people who consumed more polyphenol-rich foods had better memory scores, regardless of their sleep quality.

The takeaway? Antioxidants can buffer the damage. But they can’t reset the machine.

What They Can’t Do

Let me be direct:

No number of blueberries can fix:

• Poor sleep hygiene
• Work addiction
• Emotional suppression
• Constant digital overload

Clean eating can quietly backfire — especially when it becomes a way to control life instead of nourish it.

Food is a foundation, not a fix.

What Actually Works (In Real Life)

Here’s what I tell patients when they’re doing all the “right” things — but still feel off:

1. Anchor meals to rhythm, not mood

Eat at consistent times daily. This stabilizes your gut clock and supports digestion.

2. Start the day with color

Aim for 3+ natural colors before noon: blueberries, spinach, turmeric, red pepper.

3. Pair food with ritual

Eat away from screens. Use real dishes. Go outside if you can. This activates your parasympathetic system.

4. Don’t supplement stress away

Magnesium, ashwagandha, resveratrol — all useful. But only after the basics are covered: sleep, movement, light, and breath.

5. Get morning light every day

Even 10 minutes of sunlight in the first two hours after waking can reset your circadian rhythm, improve sleep, and reduce stress reactivity.

Rhythm Over Rescue

Here’s the core truth:

Health isn’t about rescue. It’s about rhythm.

We chase the perfect food, supplement, or hack to undo imbalance.

But the body doesn’t crave intensity.

It craves consistency.

Yes, antioxidant-rich foods help.

But when food is paired with consistent rest, movement, morning light, connection, and meaning?

That’s when transformation happens.

A Series for the Questions That Matter

Reader questions shape how I practice medicine — and how I write.

If this one resonates, know this:

You’re not alone. Many of you are doing the right things, just in the wrong context.

You can eat perfectly and still feel off.

When food becomes a companion to healing, not a crutch, that’s when the real magic begins.

The food is just the beginning.

Healing comes when your life makes space for rest.

Download my recent ebook:
My latest ebook: What Dying Patients Taught Me About Living
👉 Grab your copy here.

Read next:
→ 25 Tiny Habits That Strengthen Mental Health
→ The Silent Fire: How Chronic Inflammation Fuels Aging — and 4 Ways to Cool It Down
→ 10 Tiny Habits That Recharge You, Without Quitting Your Job

Author bio: Michael Hunter, MD, is a cancer physician, over-60 competitive bodybuilder, and bestselling wellness writer. His latest ebook is available here.

Illustration generated using ChatGPT’s image tools.

The post Can Blueberries Save You From Burnout? appeared first on Medika Life.

The launch of Roferon-A, alpha interferon marked a watershed moment in medicine: the first biotherapeutic to treat cancer, targeting the rare disease hairy-cell leukemia. I remember the packed press conference at The Pierre Hotel in New York City. Thought leaders like Dr. Jerome Groopman inspired awe. Headlines followed. The world paid attention.

That was decades ago. Since then, the biotech sector has evolved from fragile start-up spirit into a multibillion-dollar force. In the eyes of many, what was once miraculous has become mundane. And yet, the science has only grown more awe-inspiring. So why don’t we talk about it that way anymore?

Have we become numb to the very progress that extends and saves lives?

Biotechnology is arguably one of humanity’s most transformative achievements. From precision cancer immunotherapies to gene editing tools like CRISPR, we’ve leapt across medical milestones that were once the stuff of science fiction. CAR-T cell therapy rewrites the body’s immune system; mRNA platforms taught us how to respond to pandemics in real time; and personalized medicine now tailors treatments to the uniqueness of our DNA.

Despite these triumphs, we now face a paradox: the more frequently we succeed, the less exceptional it seems. Biotech, in its reliability, risks becoming background noise.

The danger here isn’t just perception—political, economic, and moral. When we stop being amazed, we stop advocating. And advocacy is essential, because science doesn’t fund itself.

The Birth of a Movement: BIO’s Role in Advancing Innovation

In the early days of this field, the promise of biotech required more than scientific breakthroughs—it demanded an organized, united voice to advocate for science, policy, funding, and public trust. That’s when the Biotechnology (Industry) Innovation Organization (BIO) emerged, uniting a fledgling industry around a shared mission: to promote innovation and ensure that the fruits of biotech reach the people who need them most.

What began as a coalition of pioneers has evolved into one of the most influential global voices for biotechnology. BIO has helped shape legislation, fostered partnerships, supported startups, and advanced equity in access and clinical trials. It has been a tireless advocate for the idea that science serves people—and that innovation without access is innovation incomplete.

As we reflect on biotech’s journey—from niche science to essential public health engine—BIO’s efforts to engage policymakers, educate the public, and convene global stakeholders at events like the annual BIO International Convention, BIO2025 have played a defining role. It’s a reminder that scientific progress is never just about the petri dish. It’s about ecosystems—coalitions of scientists, communicators, investors, and institutions aligned toward a common good.

The Threat of Institutional Apathy

Innovation doesn’t flourish in a vacuum. It requires funding, partnerships, regulatory foresight, and yes, public interest. Today, with DOGE pinching national budgets and partisanship clouding consensus, Federal funding for research is under threat. The National Institutes of Health (NIH), the world’s largest public funder of biomedical research, faces increasingly skeptical eyes and plummeting appropriations.

In parallel, biotech investors—once exuberant—have become cautious. Valuations are down. IPO windows are narrow. Even promising start-ups are forced to downsize or shutter. This isn’t just an economic cycle. It’s a societal test.

If we stop investing in innovation, diseases that could have been conquered will remain entrenched. Rare conditions will stay rare because they’re unprofitable. And the promise of personalized, preventive care will fade back into abstraction. Let’s take stock.

We’ve made incredible strides in HIV, hepatitis C, certain leukemias, and now we see glimpses of progress in previously unyielding diseases like ALS and pancreatic cancer. In some cases, such as HIV, biologics have helped turn some diseases into manageable conditions. Patients who once faced death sentences now live long, productive lives.

But so much work remains. Alzheimer’s disease continues to challenge us. Autoimmune conditions like lupus and Crohn’s demand better solutions. Pediatric rare diseases—often overlooked—leave families desperate for options. And mental health, despite its growing visibility, remains underfunded and underexplored from a biotherapeutic standpoint.

We can’t stop now. The urgency is not over.

Science Needs Storytellers

One of the most potent forces in advancing biotherapeutics isn’t just the lab bench—it’s the lens through which the public sees that bench. This is where communicators come in.

Media, public relations professionals, and advocacy leaders are not passive observers. We are active players in this ecosystem. When we frame scientific progress as human progress, we drive interest, funding, and talent into the field. When we tell stories that connect molecules to people, we give science a face—and a heartbeat.

In the early days of Roferon-A, calls from a young PR pro would turn out a full-room press conference, launching a wave of national interest. Today, the media landscape is fragmented. Clicks compete with credibility, and sensationalism wins over substance.

That only means our responsibility has grown. We must elevate the authentic voices of scientists, patients and advocates. We must cover biotech stories not just as business news, but as human stories, because they convey the struggle and potential.

Bench to Bedside is a Human Endeavor

Behind every molecular breakthrough is a researcher who missed birthdays to run experiments, a trial participant who volunteered without knowing the outcome, and a caregiver hoping that science can offer one more chance. We cannot allow their efforts to be invisible.

Let us remember that biotherapeutics are not just lab products—they are the embodiment of human hope and courage. Each FDA approval to market is a victory for a company and a patient.

And yet, even as we acknowledge this, we must grapple with another complexity: equity.

Not all communities have equal access to these innovations. Biologics are expensive. Insurance structures are slow to adapt, sometimes even resisting. Global disparities persist. If we believe in the power of biotech, we must also commit to making it accessible, advocating for affordability, inclusive clinical trials and compassionate pricing strategies.

Reclaiming the Wonder

So, where do we go from here?

We start by reawakening awe. As communicators, we must use our platforms to remind the world that biotech is not just another industry—it is a movement, a mission.

We must protect the budgets that sustain research, defend the credibility of science against misinformation, and inspire young minds to enter STEM fields not just for jobs but for the opportunity to change lives.

It starts with how we talk. Let’s use language that evokes possibility. Let’s tell stories that illuminate the patient journey. Let’s spotlight scientists with the same reverence we show to athletes or entertainers.

Biotech Without Borders

The original promise of biotechnology was to break boundaries between disciplines, possibilities, and life and death. That promise is still alive, but it needs guardians.

Now more than ever, biotech needs communicators, policymakers, and citizens who care.

I remember the days when biotech press conferences made front pages. Maybe we’ll never go back to that exact moment. But we can choose to go forward—together—into a future where science is again seen not just as data, but as destiny.

Let’s reclaim the wonder. Let’s continue to give scientists a voice, patients hope, start-up enterprises resources, and policymakers direction.

Because what’s at stake is not just the next miracle drug.  What’s at stake is our collective belief that we can still do miraculous things.

The post Biotech Without Borders: Reclaiming the Wonder of Science in a Distracted Age appeared first on Medika Life.

When I asked him what sparked joy — my now-standard question for new consults — he didn’t hesitate.

“Travel,” he said, his eyes lighting up. “Dozens of countries. I love learning how people live, eat, think.”

Then he paused. “But if I had to choose just one?”

He leaned forward, almost conspiratorially.

“Japan. Lived there over 25 years.”

I perked up. “Hontō ni?”

“Eh? Hontō hontō!” he beamed.

And just like that, the oncology suite turned into an izakaya.

We chatted in Japanese for several minutes — I, a Black man from the Pacific Northwest with a Japanese wife and a daughter who had attended college in Kyoto; he, a white man with a surprising Tokyo accent and stories that could have filled a dozen ryokans.

The nurses outside the curtain must’ve been baffled.

There we were: two middle-aged men, dressed like surgical extras, speaking rapid-fire Japanese about onsen, natto, and konbini snacks.

In radiation oncology, these are the moments you don’t forget.

The Kind of Joy You Can’t Buy

When our conversation drifted back to English, we kept circling the same theme: experience.

He told me about sleeping in the Sinai desert under a blanket of stars.

About sipping strong coffee in Addis Ababa.

About riding motorcycles through Southeast Asia before Google Maps existed.

What he didn’t talk about were things.

No fancy watches.

No new Teslas.

No gadgets.

Just the texture of moments lived.

And it hit me: the joy that lit up his face wasn’t the kind you get from opening a box.

It was the kind you earn by stepping into the unfamiliar. The kind that asks something of you — and gives back more than it takes.

The Science of Why It Feels So Good

We tend to think happiness is about comfort.

But psychologists like Dr. Laurie Santos (of Yale’s wildly popular Science of Well-Being class) suggest that the happiest people spend less on stuff and more on experiences.

Why?

Because of experiences:

• Give us stories we can retell
• Bring us into contact with others
• They are often tied to personal growth
• Don’t lose their sparkle the way objects do

A new phone gets old fast. But your first tuk-tuk ride in Bangkok? That stays with you.

There’s even a term for the trap we fall into with material things: hedonic adaptation.

The idea is that we quickly get used to new pleasures.

The house, the car, the clothes — they stop thrilling us.

But experiences?

They stay vivid.

I wrote about a similar theme in 10 Tiny Habits That Make You Healthier, Calmer, and Harder to Kill — the idea that intentional living creates lasting joy, not just fleeting dopamine hits.

My Favorite Journeys

Some of my favorite travel memories come from places that required a little more effort than, say, Paris or London.

• Egypt: navigating the frenetic, poetic chaos of Cairo traffic, then standing in stillness before the pyramids.
• Turkey: sipping tea in the shadow of the Blue Mosque, hearing the call to prayer echo across centuries.
• Japan: of course — always Japan — with its contradictions, its grace, its reverence for detail.
• Indonesia: maybe my favorite of all, where time moves differently and kindness is a national trait.

These places didn’t just offer a change of scenery. They offered a shift in me — the way I saw others, the way I understood culture, the way I experienced time.

What Travel (and Cancer) Teaches Us

My patient and I shared one more truth that day: that illness, like travel, strips you down to what matters.

It makes you see the world in a different light.

It humbles you.

And if you let it, it can open you.

Sometimes I think the best journeys aren’t measured in miles, but in mindset.

You don’t have to get on a plane.

You just have to notice something new.

Final Thoughts

That day in the exam room, two men with nothing in common on paper laughed like old friends, because we shared a language — and not just Japanese.

We shared curiosity.

And in that moment, amid machines and masks and schedules, we were both simply human.

Let the numbers tell the story.

• Free Download: “Debunked: 7 Health ‘Facts’ That Are Quietly Hurting You — Grab It Here.”
• Liked this story? Read “25 Ways to Reduce Your Cancer Risk” or “What Dying Men Confessed When No One Was Listening.”

Author bio: Michael Hunter, MD, is a cancer doctor, travel junkie, and collector of patient wisdom. His new ebook, What Dying Patients Taught Me About Living, is available here.

P.S. If this story resonated with you, follow me for weekly insights from the clinic and beyond.

The post Clinic Notes: I Didn’t Expect to Speak Japanese Today appeared first on Medika Life.

Sometimes it’s a look.

A line.

A moment that lands deeper than diagnosis.

This brief essay is a collection of those moments.

Brief.

Unexpected.

And always real.

“The Healing Power of Touch: A Patient’s Insight”

This week, a patient shared a poignant realization that emerged after years of emotional distance from his wife.

They had grown apart, but recently discovered a shared need: the simple, profound act of touch.

He reflected on how a gentle hug or a reassuring hand on the shoulder seemed to bridge the emotional gap between them.

“I think we’re wired for this,” he mused, referencing hormones like oxytocin that respond to physical affection.

His insight aligns with scientific findings.

Oxytocin, often referred to as the “love hormone,” plays a crucial role in social bonding and emotional connection.

Studies have shown that affectionate touch can increase oxytocin levels, reduce stress, and foster feelings of trust and closeness.

In fact, research indicates that even brief moments of affectionate touch can lead to measurable increases in oxytocin, a hormone that contributes to an improved mood and reduced anxiety.

This finding underscores the biological underpinnings of our need for physical connection.

My patient’s experience serves as a reminder that sometimes, healing in relationships doesn’t require grand gestures — just a touch of understanding, quite literally.

For more reflections on connection at the edge of life, read my essay: What Dying Men Confessed When No One Was Listening.

“The Prostitute’s Pasta”

In oncology, gratitude comes in many forms — thank-you notes, quiet nods, even tears.

But sometimes, it arrives as a steaming pan of pasta.

One of our patients, an older Italian gentleman with a twinkle in his eye and impeccable taste, has taken to feeding the staff.

Not metaphorically — literally.

Lasagna, tiramisu, and even delicate cannoli are dusted with sugar like freshly fallen snow.

Today, he arrived bearing a new dish. “Pasta Puttanesca!” he announced proudly. “You know — the prostitute’s pasta.”

A pause.

Then laughter. Nurses chuckled. My medical assistant nearly dropped her stethoscope.

He winked. “They say it was made quickly, between clients.”

I’ll leave the etymology to linguists.

But I can tell you this: the olives were briny, the sauce was bold, and the gratitude was unmistakable.

This event was something else entirely in a world often defined by scans and side effects.

A recipe for connection.

Served al dente.

Note: For patient privacy, I have modified some details.

Here are my previous Clinic Notes essays:

1. Clinic Notes 5/18/2025
2. Clinic Notes 6/26/2025

Want more stories like these — plus the science behind living longer and better? I’ve distilled the most powerful lessons from oncology, aging research, and patient wisdom into my new ebook: Extending Life and Healthspan.

Practical, evidence-based, and full of humanity.

The post Clinic Notes: What My Patients Said This Week appeared first on Medika Life.

When skilled medical care is guided by empathy, it becomes something greater. It rises beyond competency. It becomes a connection. It becomes care.

We celebrate survival and measurable outcomes — and we should, however, carry with us what people carry with them long after the diagnosis, such as what was done and how we were treated in the process. It is when a physician takes the time to explain the next steps clearly. It’s the kind gesture from a nurse, the smile behind the mask, the call that came just to check-in. These human elements are not extras. Communication is always part of care.

The most enduring part of the health journey is whether people survive and how they are treated while they try.

People Always, Sometimes Patients

People navigating illness rarely rave about systems. They remember moments — how a physician sat and listened, the hand on the shoulder, the honest, unhurried explanation. They speak of kindness, clarity, and dignity. Empathy is not an accessory to care — it is the essence of care. The data backs that up.

A Medscape report confirmed that patients with chronic pain experienced significant improvement when treated by physicians who exhibited empathy. In Patient Education and Counseling studies, empathy led to better communication, treatment adherence, and clinical outcomes. Harvard Medical School research shows that when patients feel heard and understood, they’re more likely to engage in their care and experience improved results. This is more than perception — it’s physiology. Stress levels drop, trust increases, and healing accelerates.

Empathy isn’t a “soft skill.” It’s a clinical tool that improves outcomes and humanizes healthcare. In How Doctors Think, Jerome Groopman, MD, reminds us that data does not replace presence: “Statistics cannot substitute for the human being before you; statistics embody averages, not individuals.” Every patient has a backstory — a unique path to the clinic door — and when physicians listen, they gain context and insight.

In 1993, the late Arnold P. Gold, MD of Columbia University, reimagined the start of a medical student’s journey by introducing the “White Coat Ceremony” — a symbol of professionalism and compassion in care. His vision was simple but profound: remind future physicians from day one that medicine is about people, not just pathology.

The ceremony expanded to nursing and other health professions under the leadership of Richard I. Levin, MD, Professor Emeritus of Medicine, Department of Medicine at NYU Langone Health and former President and CEO of The Arnold P. Gold Foundation. “We mourn for him,” Dr. Levin said of Dr. Gold, “but as we celebrate his unique life, we can all carry his legacy forward in love.” The White Coat Ceremony, born from one physician’s belief in the power of human connection, can be a learning experience shaping the heart of health professionals.

The Clinicians Who Lead with Heart

This approach is not hypothetical. It’s exemplified by physicians whose names are synonymous with excellence and empathy. These are outstanding physicians I have encountered through the years. They and their office or department teams collectively demonstrate that knowledge and empathic caring create memorable medical experiences.

Empathy is not just a soft skill in healing — it’s a clinical art. It allows a physician to step into the world of their patient and grasp their experience emotionally, intellectually, and behaviorally. However, empathy goes further: it means communicating that understanding, validating the patient’s concerns, and transforming the exchange into therapeutic action. Empathy becomes the bridge between the healer and those seeking to be healed — where listening becomes treatment, and understanding becomes care.

This fusion of clinical excellence and genuine empathy distinguishes exceptional physicians in healthcare delivery. These physicians prove that it is possible to be both an outstanding clinical physician with a heart and conscience:

A distinguished urologist in New Jersey, Joseph V. DiTrolio, MD, who only recently announced his retirement from clinical practice, seamlessly integrated innovative techniques with a patient-first philosophy for years. His approachable demeanor — insisting patients call him “Joe” — fosters a comforting environment where individuals feel genuinely valued. Beyond his clinical practice, Dr. DiTrolio has contributed significantly to urology through product development and holds several patents. His commitment to education is evident in his Clinical Professor of Surgery role at New Jersey Medical School.

Serving as President of Mount Sinai Fuster Heart Hospital and Physician-in-Chief of The Mount Sinai Hospital, Valentin Fuster, MD, embodies the integration of empathy and leadership. His holistic approach to cardiovascular health — encompassing research, patient care, public health policy and education — has made a global impact. Dr. Fuster’s development of a cardiovascular “polypill” reflects his dedication to accessible patient care, reducing cardiovascular mortality by 33 percent among heart attack survivors. His contributions have been recognized with numerous accolades, including the World Heart Federation Lifetime Achievement Award. He makes himself 100 percent available, whether focusing on a patient in the ER awaiting treatment, rebuilding Haiti’s health system, focusing on the needs of communities in Spain, or leading a global professional association. His heart is in everything he engages.

As Chair of Radiation Oncology at Cooperman Barnabas Medical Center, Alison Grann, MD, exemplifies the harmonious blend of clinical precision and emotional intelligence. Recognizing the emotional weight of specific diagnoses, she ensures that every patient interaction — from reception to treatment — is infused with warmth and respect. Her leadership fosters an environment where patients feel seen and heard, reinforcing their trust in their care. Dr. Grann’s commitment extends beyond patient care; she actively engages in research and holds a Clinical Assistant Professorship at Rutgers Cancer Institute of New Jersey.

At Weill Cornell Medicine, Allyson J. Ocean, MD, stands out as a leading gastrointestinal oncologist and patient advocate. Her compassionate approach clarifies the uncertainties of oncology, deeply resonating with patients. As a co-founder of “Let’s Win Pancreatic Cancer,” she heeded the counsel of a communication leader – one of her patients – the late Anne Glauber – and turned the pancreatic cancer journey into a broader mission to extend others’ lives. Dr. Ocean’s dedication to patient-centered care is further demonstrated through her roles at The Jay Monahan Center for Gastrointestinal Health and her active involvement in clinical research and education.

At NYU Langone, Lawrence (Larry) Phillips, MD, delivers exceptional cardiovascular care rooted in empathy and connection. In a specialty where urgency often overtakes interaction, he slows the pace — making listening his first intervention. Patients consistently highlight how seen and heard they feel, a testament to his people-first approach. Board-certified in Internal Medicine and Cardiovascular Disease, Dr. Phillips also serves at NYC Health + Hospitals/Bellevue and is a passionate advocate with the American Heart Association, leading grassroots efforts to expand CPR training and community heart health education.

As Chief Medical Officer of WebMD, John Whyte, MD, MPH, bridges the worlds of clinical practice, public health, and consumer education — delivering trusted health information with empathy and clarity. He sees patients weekly, grounding his clinical leadership in real-world care. Dr. Whyte’s books, including Take Control of Your Cancer Risk and Is This Normal?, reflect his commitment to guiding people through their health journeys with candor and compassion. A former leader at the Food and Drug Administration and the Centers for Medicare & Medicaid Services, he brings a public health lens to his work, ensuring each message empowers and every patient feels seen.

These physicians exemplify how empathy and medical expertise transform patient care and cement community admiration. They do more than heal — they restore faith in the system and dignity to the patient’s journey.

Stop Calling Us Beneficiaries — We’re Paying Customers

Empathy must extend beyond the individual clinician and become a defining trait of our health system, from how we write policies to how we answer phones.

Too often, people in need of care face frustration instead of compassion. Insurance denials, confusing bills, impersonal communications — these compound the stress of illness. But forward-thinking organizations are challenging that norm.

In the health industry, we often claim that the patient is at the center of care and that naïve Band-Aid should be ripped off. The murder of Brian Thompson is a tragic and terrifying wake-up call to the US health insurance industry. However, the headlines have receded into the background, and with the passing news cycle, so has the urgency to evolve the care coverage system.

The public reaction to Thompson’s death gives us an essential opportunity to recognize that we have lost the trust of many of the people the sector seeks to serve. The trauma of this terrible moment can be addressed in one of two ways — avoidance or engagement. This event must catalyze health companies to reassess their approach to patient care and public trust.

Profitability and service to the patient aren’t two separate outcomes. Investing in interventional care and providing that care are also inextricably intertwined. The industry should consider several key recommendations. Some companies do what is needed to treat “beneficiaries” and “members” more like paying and valued customers.

MetLife and Guardian Life have partnered with Empathy, a platform designed to support beneficiaries through bereavement. These companies understand that losing a loved one is not just a claims process; it’s a human-customer-like — experience. They’ve committed to making that moment one of guidance, not bureaucracy.

Operationally, insurance teams must rethink how they respond to prior authorization requests. What if instead of a hard “No,” a representative said, “Let’s see what we can do together”? That’s not just good service. It lowers people’s tension and is good medicine. When insurance becomes a partner, not a process, people feel seen — not shuffled.

In the broader system, patient navigation — first championed by a physician who became an authority on race, poverty, and cancer — Harold Freeman, MD — shows that outcomes improve when people have support navigating the maze of care. Especially in underserved communities, navigators ensure that empathy is not dependent on privilege. It becomes a universal right.

Designing for Dignity

Empathy isn’t just something we express; it’s something we can design. We can build it into:

• The architecture of clinics that create calm, not chaos
• The approach we take in helping patients complete registration
• The way we train AI and LLMs to converse with respect
• The tone of insurance letters that minimize legalese and empathize with care
• The workflows that give nurses and doctors more time to connect

We must think of empathy not as reactive but as proactive. It must be embedded in systems, supported by policy, and measured by efficiency and experience. Empathy differentiates between treating a condition, focusing on a body part, and healing a person.

The System’s Soul

At its best, medicine is more than what we do — it is about how we do it. Empathy does not appear on a chart and is not coded into billing. But its absence is always felt, and its presence potentially transforms the entire care experience.

Empathy binds us back to our purpose, whether we are physicians in a clinic, nurses in an ICU, call center agents helping a customer navigate issues with a denied claim, or patient navigators walking with someone through a new diagnosis.

As we move into the future of AI, automation, digital health, and remote care, our most vital technology remains human connection. Our most critical clinical protocol is compassion.

Empathy is not a soft idea. It is medicine’s soul in action.

The post Empathy and Health Excellence — The Superpower of Care Delivery appeared first on Medika Life.

“First 100 days,” said Means, a former consultant to Big Pharma who uses the social platform X to focus attention on chronic disease. “What should be done to reform the FDA?”

The question was more than rhetorical. Means is among a cadre of health business leaders and nonmainstream doctors who are influencing President Donald Trump’s focus on health policy.

Trump’s return to the White House has given Means and others in this space significant clout in shaping the nascent health policies of the new administration and its federal agencies. It’s also giving newfound momentum to “Make America Healthy Again,” or MAHA, a controversial movement that challenges prevailing thinking on public health and chronic disease.

Its followers couch their ideals in phrases like “health freedom” and “true health.” Their stated causes are as diverse as revamping certain agricultural subsidies, firing National Institutes of Health employees, rethinking childhood vaccination schedules, and banning marketing of ultra-processed foods to children on TV.

Public health leaders say the emerging Trump administration’s interest in elevating the sometimes unorthodox concepts could be catastrophic, eroding decades of scientific progress while spurring a rise in preventable disease. They worry the administration’s support could weaken trust in public health agencies.

Georges Benjamin, executive director of the American Public Health Association, said he welcomes broad intellectual scientific discussion but is concerned that Trump will parrot untested and unproven public health ideas he hears as if they are fact.

Experience has shown that people with unproven ideas will have his ear and his “very large bully pulpit,” he said. “Because he’s president, people will believe he won’t say things that aren’t true. This president, he will.”

But those in the MAHA camp have a very different take. They say they have been maligned as dangerous for questioning the status quo. The election has given them an enormous opportunity to shape politics and policies, and they say they won’t undermine public health. Instead, they say, they will restore trust in federal health agencies that lost public support during the pandemic.

“It may be a brilliant strategy by the right,” said Peter McCullough, a cardiologist who has come under fire for saying covid-19 vaccines are unsafe. He was describing some of the election-season messaging that mainstreamed their perspectives. “The right was saying we care about medical and environmental issues. The left was pursuing abortion rights and a negative campaign on Trump. But everyone should care about health. Health should be apolitical.”

The movement is largely anti-regulatory and anti-big government, whether concerning raw milk or drug approvals, although implementing changes would require more regulation. Many of its concepts cross over to include ideas that have also been championed by some on the far left.

Robert F. Kennedy Jr., an anti-vaccine activist Trump has nominated to run the Department of Health and Human Services, has called for firing hundreds of people at the National Institutes of Health, removing fluoride from water, boosting federal support for psychedelic therapy, and loosening restrictions on raw milk, consumption of which can expose consumers to foodborne illness. Its sale has prompted federal raids on farms for not complying with food safety regulations.

Means has called for top-down changes at the U.S. Department of Agriculture, which he says has been co-opted by the food industry.

Though he himself is not trained in science or medicine, he has said people had almost no chance of dying of covid-19 if they were “metabolically healthy,” referring to eating, sleeping, exercise, and stress management habits, and has said that about 85% of deaths and health care costs in the U.S. are tied to preventable foodborne metabolic conditions.

A co-founder of Truemed, a company that helps consumers use pretax savings and reimbursement programs on supplements, sleep aids, and exercise equipment, Means says he has had conversations behind closed doors with dozens of members of Congress. He said he also helped bring RFK Jr. and Trump together. RFK Jr. endorsed Trump in August after ending his independent presidential campaign.

“I had this vision for a year, actually. It sounds very woo-woo, but I was in a sweat tent with him in Austin at a campaign event six months before, and I just had this strong vision of him standing with Trump,” Means said recently on the Joe Rogan Experience podcast.

The former self-described never-Trumper said that, after Trump’s first assassination attempt, he felt it was a powerful moment. Means called RFK Jr. and worked with conservative political commentator Tucker Carlson to connect him to the former president. Trump and RFK Jr. then had weeks of conversations about topics such as child obesity and causes of infertility, Means said.

“I really felt, and he felt, like this could be a realignment of American politics,” Means said.

He is joined in the effort by his sister, Casey Means, a Stanford University-trained doctor and co-author with her brother of “Good Energy,” a book about improving metabolic health. The duo has blamed Big Pharma and the agriculture industry for increasing rates of obesity, depression, and chronic health conditions in the country. They have also raised questions about vaccines.

“Yeah, I bet that one vaccine probably isn’t causing autism, but what about the 20 that they are getting before 18 months,” Casey Means said in the Joe Rogan podcast episode with her brother.

The movement, which challenges what its adherents call “the cult of science,” gained significant traction during the pandemic, fueled by a backlash against vaccine and mask mandates that flourished during the Biden administration. Many of its supporters say they gained followers who believed they had been misled on the effectiveness of covid-19 vaccines.

In July 2022, Deborah Birx, covid-19 response coordinator in Trump’s first administration, said on Fox News that “we overplayed the vaccines,” although she noted that they do work.

Anthony Fauci, who advised Trump during the pandemic, in December 2020 called the vaccines a game changer that could diminish covid-19 the way the polio vaccine did for that disease.

Eventually, though, it became evident that the shots don’t necessarily prevent transmission and the effectiveness of the booster wanes with time, which some conservatives say led to disillusionment that has driven interest in the health freedom movement.

Federal health officials say the rollout of the covid vaccine was a turning point in the pandemic and that the shots lessen the severity of the disease by teaching the immune system to recognize and fight the virus that causes it.

Postelection, some Trump allies such as Elon Musk have called for Fauci to be prosecuted. Fauci declined to comment.

Joe Grogan, a former director of the White House’s Domestic Policy Council and assistant to Trump, said conservatives have been trying to articulate why government control of health care is troublesome.

“Two things have happened. The government went totally overboard and lied about many things during covid and showed no compassion about people’s needs outside of covid,” he said. “RFK Jr. came along and articulated very simply that government control of health care can’t be trusted, and we’re spending money, and it isn’t making anyone healthier. In some instances, it may be making people sicker.”

The MAHA movement capitalizes on many of the nonconventional health concepts that have been darlings of the left, such as promoting organic foods and food as medicine. But in an environment of polarized politics, the growing prominence of leaders who challenge what they call the cult of science could lead to more public confusion and division, some health analysts say.

Jeffrey Singer, a surgeon and senior fellow at the Cato Institute, a libertarian public policy research group, said in a statement that he agrees with RFK Jr.’s focus on reevaluating the public health system. But he said it comes with risks.

“I am concerned that many of RFK Jr.’s claims about vaccine safety, environmental toxins, and food additives lack evidence, have stoked public fears, and contributed to a decline in childhood vaccination rates,” he said.

Measles vaccination among kindergartners in the U.S. dropped to 92.7% in the 2023-24 school year from 95.2% in the 2019-20 school year, according to the Centers for Disease Control and Prevention. The agency said that has left about 280,000 kindergartners at risk.

KFF Health News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about KFF.

The post Make America Healthy Again: An Unconventional Movement That May Have Found Its Moment appeared first on Medika Life.

Authorities finally brought the physician in question, Larry Nasser, to justice and sentenced him for multiple felony offenses against patients all over the state. This resulted in him receiving a sentence that could exceed 100 years in prison.

How could this have happened in a world where patients are supposed to trust their physicians, particularly their gynecologists? This medical specialty, as well as urology, gives the physician unfettered access to patients. Urology is where male sexual abuse occurs. How many men come forward with allegations of rape or sexual abuse by a physician?

The prestigious Columbia University paid out millions to abused patients and, curiously, the physician in question (Robert Hadden) had a prior charge of sexual abuse that was lowered and, according to The New York Times, the prosecutor “agreed to not seek prison time and promised not to pursue new sexual abuse allegations against him. His sex-offender status was reduced so that it would end after 20 years and his name would not be on an online list of offenders.” But his case is not the only one where a sexual abuser is permitted to remain free and practice medicine.

I was prompted to write this article today after seeing a media article about a female gynecologist who had been catfishing other women on an Internet dating platform where she presented herself as a man. The physician is still working at a reputable medical center, where management has decided the issue is irrelevant since she stopped doing it and was only engaged in that activity about a decade ago. A sociologist later discovered the charade and transformed it into a bestseller.

The Actions of Medical Boards

Medical boards are expected not only to uphold the standards of care but also to provide a layer of protection for both patients and practitioners. However, too often this is not the case, and I have been told by several physicians that certain state medical boards are less than vigorous in these regards. Patients soon learn that they will be given short shrift when expressing concerns about a physician’s behavior toward them.

Even though there is an explicit ban on doctors having sexual interactions with their patients, some physicians nevertheless abuse their patients sexually. No one knows how many doctors in the United States have sexually abused their patients. Only a small percentage of doctors have had “reportable” repercussions due to their unethical practices, according to data from the National Practitioner Data Bank on unfavorable disciplinary actions by state medical boards, institutional sanctions for peer review, and malpractice payouts.

A lack of clarification of licensure, prior employment, and potential actions brought to bear against physicians by institutions, such as hospitals and medical centers, is required. However, that may not be the case in every instance. Such a failure to adequately assess someone’s prior employment, obviously led to the infamous Dr. Michael Swango going from state to state where he killed patients. One dean became suspicious and started calling other facilities, which led to the complete uncovering of his activities and his apprehension. He may have killed 60 patients.

The issue is of particular personal concern to me since a relative, after a period of almost 40 years, told us that she had been sexually assaulted by our family physician when she was 16. She was afraid to tell anyone, at that time, because she thought she would not be believed. Ironically, this was the same man who delivered one of my sisters’ children, and we had implicit faith in him. Of course, that would have added to this relative’s reluctance to reveal anything.

Subsequently, the physician met with a horrific end. Men broke into his medical office, seeking drugs, and beat him so that he lost his vision, and a few years later, he died. We know from research, specifically on pedophiles, that persons with strong ties to families are the ones who are most likely to offend against that family.

For treatment of a spider bite behind her knee, a woman visited a family friend, Dr. Esmail Nadjmabadi. Under the guise of a colon cancer test, he sexually assaulted her in his exam room.

According to the Los Angeles Times, Nadjmabadi is included in a group of ten California doctors who regained their licenses after being suspended for sexual misconduct.

An analysis of board data conducted by the Times revealed that out of all doctors whose licenses were revoked for any other reason, the state Medical Board reinstated the licenses of almost 50% of sex offenders who applied for them.

How many investigators do medical boards employ, or do they employ any at all? We have a duty to protect healthcare professionals and patients from harm, including sexual harm. In the case of college-based medical care, we also see instances of sexual abuse by these professionals, and the schools are usually reluctant to have student victims take the case off campus to the local police.

University Clinics’ Involvement

In my wish to be fully informed, I once asked, a man who was responsible for student campus safety what he did when a woman student complained of unwanted sexual behavior by other students. “We move the man to another housing unit on campus,” he said, believing that solved the issue altogether. The police were never involved.

The case of Tatiana Tarasoff highlights the reluctance to involve law enforcement on campus. A student in therapy with a university-employed psychologist related his homicidal fantasies regarding Ms. Tarasoff. The psychologist and his mentor decided that only the campus police needed to know and the matter was not addressed with local authorities. Subsequently, upon returning to campus from a brief vacation, the woman was murdered, and the student pleaded mental impairment and left the country.

At one time, I had the opportunity to teach during the summer at a major university, and staff brought the issue of on-campus rape to my attention. I do not know if the parents who were bringing their daughters for campus tours were ever told about this, but it would seem they should have been informed.

The only notice that there was a problem was a flyer posted in some buildings stating that young women could request escorts back to their dormitories in the evening. While there, I recall that a young woman riding a bike on campus went missing.

I have to wonder if there were any complaints of untoward sexual behavior in the medical clinic on the grounds. Of course, I have nothing to base this on. I am merely asking the question.

Mental Health Professionals Abuse, Too

Medical professionals not only engage in sexual abuse of patients in physical exam situations but also mental health situations. A peer once told me about a psychiatrist who required women to strip to the waist for breast examinations during family therapy evaluations.

Anyone who knows anything about mental health knows that the mammaries are not involved in these kinds of evaluations. The resolution? After this staff found out about his actions, management permitted him to take a vacation and transfer to a clinic in another state where he probably practices. Did anyone check up on his prior employment?

A distressed student once told me that her boyfriend confided in her that his female psychologist was having sexual intercourse with him at every session. This act was unethical, and someone should have brought charges against her. His mother, a psychologist, referred him to this woman, obviously not knowing of her disregard for patients in service of her own pleasures.

In another instance, I learned years ago about a psychologist who was taking young male patients home from a psychiatric hospital for the weekend. Allegedly, this was a treat for their good behavior during the week, but his wife did not see it that way. The chief of psychology at the hospital dismissed her as a deranged woman with mental health problems when she complained. The woman had no history of mental health issues.

As far as I know, nobody investigated this alleged activity, and the chief sided with the psychologist against these allegations. Eventually, the psychologist left the hospital, and I found out he was having an affair with a priest. He and his wife did divorce.

How Can Patients Be Protected?

By implementing simple guidelines, the institutions we trust with our lives and health may not put an end to the trend of allowing patients to be sexually abused, but it can somewhat stifle criminal acts. Specifically, healthcare offices and systems should require one or two healthcare providers in the room during sensitive assessments.

All medical personnel must be obliged to complete extensive training programs regarding proper boundaries and patient rights before engaging in delicate examinations. They must also educate patients about proper boundaries and procedures before conducting sensitive exams.

All employment applications need to receive adequate verification and letters of recommendation from reliable sources. A person’s high profile cannot be viewed as a reason to dismiss this careful review.

Institutions that receive reports of abuse must act quickly to stop the abuse and investigate to determine exactly what happened. Creating strong reporting and discipline procedures might also motivate coworkers to report any wrongdoing. Patients should also report allegations of sexual abuse by medical personnel to the police.

Situations of a one up, one down, as in the case of medical care, are highly attractive for individuals with nefarious intentions. They must be thwarted and routed out before they can do any more damage to patients. Each of us should care for our “neighbors.” If we care for each other, then we provide the necessary protection against those who would care less.

The post Patient’s Medical Trust Shredded by Those Who Took the Oath appeared first on Medika Life.

Recurrent respiratory papillomatosis (RRP) is just one of those unexpected HPV-driven conditions. RRP is not a sexually transmitted disease and patients are not contagious. An estimated 15,000 to 20,000 people in the United States and more than 125,000 globally have RRP. This burdensome disease takes several forms and impacts people’s upper or lower respiratory tracts or presents as recurrent lesions on the vocal cords or adjacent tissues that require endless corrective surgeries. The treatment often results in permanent damage to a person’s voice.

RRP falls into two demographic subtypes: juvenile-onset (even toddlers) RRP and adult-onset RRP. Each presents unique medical management and lifestyle difficulties, and in addressing these challenges, patient advocacy—raising awareness and building a supportive community—is critically important.

Since it has no Food and Drug Administration (FDA)- approved treatment or cure, patients and scientists devote energy and resources to ensuring people with RRP have access to information. They are in the loop about clinical possibilities for this rare disease. No cure doesn’t mean there is no action!

Beyond the physical challenges of dealing with the disease – and the missed life events and career detours resulting from repeated surgeries, patients also face significant and demoralizing administrative challenges, such as battling payers to cover care using drugs not indicated by the Food and Drug Administration (FDA) for RRP or deemed “not sufficiently proven.”

The lack of treatment does not mean the RRP community is without hope. They are resilient and courageous and are making meaningful connections through the patient advocacy efforts of the Recurrent Respiratory Papillomatosis Foundation. They are reaching and inspiring researchers at the National Institutes of Health to pursue breakthrough research and oversee clinical trials. They also connect with scientists advancing possible therapies at discovery and clinical-stage biopharmaceutical companies like Precigen and encourage them to move forward by enrolling in clinical trials.

Collaboration Accelerates Change

When people unite, their presence creates energy. The Recurrent Respiratory Papillomatosis Foundation, biotech company Precigen, the National Cancer Institute (NCI), and RRP patients and their caregivers met on June 11th at the National Press Club for the Inaugural International Recurrent Respiratory Papillomatosis Awareness Day. This was an inflection point for those who follow the rare disease category.

The gathering wasn’t about hype or baseless optimism; it was a meeting that brought people together, prepared and ready to roll up their sleeves and get to work. It was a day that reaffirmed a commitment to transparency and a truthful assessment of the current situation and path forward.

Virginia Senator Mark Warner, chair of the powerful Senate Intelligence Committee, which oversees cybersecurity efforts that are key to healthcare and innovation data protection, kicked off RRP Awareness Day by expressing his support for people with rare diseases and his desire to help RRP patients find their voice. Senator Warner stated his desire to advance research and innovation and ensure access to care, an expression of determination that reflected his long-standing record on behalf of people seeking treatment options and improved outcomes.   

RRP Foundation President Kim McClellan also spoke as an advocate for the RRP community and as a patient. “We are here to raise awareness about RRP and bring together critical stakeholders in a dialogue on important aspects impacting individuals living with RRP,” she said. “We invite and encourage anyone living with RRP, either as a patient, family member or caregiver, to join us in spreading the word about RRP and participate in clinical trials and advocacy efforts.”

The date of this groundbreaking gathering has special meaning for the RRP community. June 11th (6/11) corresponds to HPV variants 6 and 11 associated with RRP. As the date symbolizes, the gathering united people with the disease, their family members, congressional leaders, and researchers from government agencies and corporate partners in a community united in a common cause.

The opportunity to share and hear multiple perspectives enriched discussions and underscored the importance of taking a comprehensive approach to tackling this condition. Panels of experts and patients sharing personal stories about their journeys gave attendees an unmatched opportunity to delve into the intricacies and impacts of RRP.

Helen Sabzevari, PhD, President and CEO of Precigen, expressed that she and her company were “proud to join forces with the RRP Foundation to establish the first global RRP Awareness Day to bring visibility to the many challenges experienced by RRP patients and to help forge connections among patients, clinicians and government officials.”

A former NCI team leader, Dr. Sabzevari’s commitment to RRP awareness and patient well-being as an animating principle is a model biopharma company C-Suite executives would be wise to emulate. For her and her Precigen colleagues, patients are the focal point of every decision, action, and investment.

RRP Awareness Day was an inspiring platform for discussing struggle, stigma, and science. Lunch was optional, but tissues were required as attendees in the filled-to-capacity room listened to a patient panel on how RRP impacts people and their families. They learned how some individuals living with RRP have needed hundreds of surgeries over the years, beginning when they were toddlers or young children in primary school.

Culture Drives Clinical Performance

Therapeutic innovations are needed to ensure that future generations living with RRP have options reviewed and indicated by the FDA for treating this viral condition.

During the event, a panel of representatives from advocacy and research reflected on how their collaborative approach centering around patients – from the design of clinical trials to allocating resources that have enabled patients to participate in those trials – has been vital in accelerating the R&D process toward identifying and developing viable treatments. The panel included James Gulley, MD., PhD., NIH, Senior Investigator, Center for Immuno-Oncology, Acting Co-Director, National Cancer Institute/Center for Cancer Research; Scott M. Norberg, DO., NIH, Associate Research Physician, Center for Immuno-Oncology; Helen Sabzevari, PhD, CEO, Precigen; and Kim McClellan, President, RRP Foundation.

Dr. Gulley, who is part of the NCI team and has been instrumental in advancing research on RRP and its connection to HPV, emphasized the pressing need for innovative therapies. In his panel comments, Dr. Gulley highlighted the importance of collaborative research efforts to explore potential immunotherapeutic approaches that could offer new hope for patients suffering from this debilitating condition.

No Disagreement – Harmony

Panelists Gulley, Norberg, and Sabzevari applauded the patient community, acknowledging the courage of their readiness to volunteer to participate in clinical trials to speed possible therapeutics forward. It was a reassuring presence and a reminder that public-private collaborations, particularly for rare diseases, do more than spark hope; they spur action. The patient-panel takeaways were: (1) Connect with the RRP Foundation, (2) Support ongoing clinical trial efforts, (3) Prevention through HPV vaccination is key.

While there is still no FDA-approved treatment to manage RRP, this community remains resilient and upbeat, inspiring everyone facing the challenge of rare conditions. The RRP Foundation, Precigen, and NCI are on the same page—science is essential. People living with RRP can remain hopeful that this collaboration will continue until actions result in better options for this patient community.

The post HPV Urban Legends – From Contagion to Symptoms to Risks to Prevention – There Are More Rare Concerns that Deserve Our Attention appeared first on Medika Life.